Originally Posted by Armistead
No, there is no cure per say. It was called RSD when I got it, more referred to as CRPS now. What happens is a person gets an injury, this sends pain signals to the brain, but for the unlucky few the brain misfires sending pain signals all over the body and nerve death sets in. It's considered the most painful disease known to man, often called the suicide disease.
The only way I could explain it was a frozen burn, like setting outside naked in freezing weather until the cold turns into severe burn, like painful frostbite, cept you can never go inside to get warm. You feel on fire. Mine went systemic, over 80% of my body.
If they figure it out early, they can do nerve blocks and stop it, but it's missed 90% of the time. Usually it takes 5 years before most get a dx.
I keep count, I've had 17 friends over the last seven years commit suicide that were in a few support groups around here. Most give up when pushed into total poverty and lose medical care. Shame, with the proper treatment and pain meds, most live in severe pain, but they can bare it, but you need lot's of money and good medical insurance to get correct help. Just a few months ago I went to check on a man in our group that wouldn't answer his phone. I already knew. Got to his house, door unlocked, found him in the bathtub, shot himself through the heart. Also found out he had been cooking hard dogfood mixed with flour to eat.
There are hundreds of thousands that suffer from such nerve diseases. Most end up in utter poverty and pain, many can't handle both. The fact is these people are discarded by our society. Sadly, strong narcotics are cheap, Neurologist aren't, so many do without.
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03-01-11, 03:35 PM
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