Bad News

[Rockstar]

Feuer Frei! It pains me to no end to have to hear this. I wish there was some magic pill which take it all away but there isn't one, yet. But modern medicine believe it or not is getting close to those things.

My wife had a very rare form of stage 2a uterine cancer, a type that IF a women gets it normally happens around the age of 80, she was 39 then. It was an aggressive cancer with a piss poor survival rate. She passed the five year mark two years ago.

From watching her deal with it. My advice would be to get on with life, don't let this upset your routine. As an example, my wife is a swimmer, loves it, in her younger days she set the Dolphin Club record in the Alcatraz swim she also used to do the Lanai to Maui swim. Anyways, the nurses would get on her about swimming because as they said there are germs in the showers and pool therefore a greater potential for infection. She told them to pack sand, she never stopped doing what loved to to do. The Dr at the time a wonderful man who took care of her very well told her to just keep on doing what you're doing and don't let others stand in the way. He now recommends swimming to all his cancer patients.

During chemo you lose your appetitie YOU MUST EAT whether you want to or not. It's been found so many people fail during this time not because of the cancer but from malnutrition. Trash the candies, donuts and sweets these will not help and only feed the cancer.

EAT HEALTHY!

Stop researching how bad this is and start researching things on how to combat this on your own like vitamin C, foods, exercise, attitude, and yes even prayer to YHWH.

Didn't Lance Armstrong have a form of testicular cancer? It can be beat don't withdraw, don't give up. Approach this with your fangs out and hair on fire!

Finding a support group may help too, encourage one another, you will find it is much easier to speak with people who have gone through or going to go through the same thing you are. Others (though they mean well) you will find out shortly cannot truly understand what you are going through.


REMEMBER **** FANGS OUT! **** HAIR ON FIRE!


.

[Feuer Frei!]

Originally Posted by Magic1111

Hi FF !

Es tut mir so unendlich leid für Dich, wünsche Dir von Herzen das aller, aller Beste ! Und ich bete für Dich !

Jetzt mach bitte genau das, was immer auf Deiner Signatur steht:

"Niemals aufgeben" !!!

Viele Grüße,
Thomas ("Magic")

P.S.: Wie alt bist Du eigentlich ?

Ich bin 39 Jahre alt. Eigentlich recht jung, aber habe gehöhrt das das ganz normal ist in dem Alter.
Niemals aufgeben, tja, da haben Sie recht. Anders werde das nich gehen mit diesem Fall.
Danke für Deine Worte. Jetzt im Moment bin ich shell-shocked. Weiss nicht was ich machen soll.
So viele Gedanken rennen im Kopf herum.
Ich bete zu unserem Herrn, der kann mir bestimmt helfen! Ich brauche Seine Hilfe jetzt.
Ich halte Dich am Laufenden. Danke nochmahls.

Originally Posted by Flaxpants

All the best to you mate, I will watch for news of your progress- lots of support around here.

A friend of mine had the same thing, he's all over it now and is back to his usual life, got a clear bill of health- look forward to you telling us the same.

Thanks m8, did your friend go through chemo? How long for?
3 months is the minimum i have heard, and the fact sheet i linked earlier indicates that too.
Was there any weight loss? With him? The Doctors said that that is one of the side effects. But then i don't know what to believe, because in some people it makes them gain weight. That is due to the steroid tablet/injection.

Originally Posted by Castout

Oh man you are in my thoughts now and will be in my prayer.

Stay strong. Somehow I got the impression that you're a good person.

Stay cheerful with what life throws at you mate. I really do hope all will be okay in the end.

Sorry to hear about your mother condition. Nevertheless do visit her. You can't if she was gone.

Thank you Castout. Thank you for your prayers and kind words.
My mother is gradually getting worse.
The norm is nowadays that she sleeps until midday, she may get up before then and complain about pains and she says she has no hunger for food, so she goes back to bed.
It is a habit with her now. Repeating things often, loss of memory, not remembering what she said previously, or seeking words to describe something.
All signs of early onset of Dementia.
My father is fast coming to the conclusion that outside intervention is needed. He is not sure how to handle the situation anymore. She has lost a lot of weight due to not eating much anymore. Once that happens it is getting difficult.
I spoke to my Mother a week ago, and it was a harrowing experience, to say the least.
I was emotional but did not show signs of it towards her.
Inwardly emotional.
It really touches you when a loved one is slipping down a deep slope like this.

Originally Posted by papa_smurf

Heres to a full recovery, hope to god I never find a lump down there. Athough I did have a scare last year when I felt lumps under my left arm pit, went straight to my GP and fortunately it was just my lymph nodes were inflamed and went after a few days - still feared the worst and glad it wasn't cancer.

Good news sir! I'm happy it was a false alarm.
It pays to get things checked out doesn't it?

Originally Posted by Rockstar

Feuer Frei! It pains me to no end to have to hear this. I wish there was some magic pill which take it all away but there isn't one, yet. But modern medicine believe it or not is getting close to those things.

My wife had a very rare form of stage 2a uterine cancer, a type that IF a women gets it normally happens around the age of 80, she was 39 then. It was an aggressive cancer with a piss poor survival rate. She passed the five year mark two years ago.

My God, that is young. But, great news for you and your wife!
Good on her. She's a fighter.

From watching her deal with it. My advice would be to get on with life, don't let this upset your routine. As an example, my wife is a swimmer, loves it, in her younger days she set the Dolphin Club record in the Alcatraz swim she also used to do the Lanai to Maui swim. Anyways, the nurses would get on her about swimming because as they said there are germs in the showers and pool therefore a greater potential for infection. She told them to pack sand, she never stopped doing what loved to to do. The Dr at the time a wonderful man who took care of her very well told her to just keep on doing what you're doing and don't let others stand in the way. He now recommends swimming to all his cancer patients.

During chemo you lose your appetitie YOU MUST EAT whether you want to or not. It's been found so many people fail during this time not because of the cancer but from malnutrition. Trash the candies, donuts and sweets these will not help and only feed the cancer.

EAT HEALTHY!

Stop researching how bad this is and start researching things on how to combat this on your own like vitamin C, foods, exercise, attitude, and yes even prayer to YHWH.

Didn't Lance Armstrong have a form of testicular cancer? It can be beat don't withdraw, don't give up. Approach this with your fangs out and hair on fire!

Finding a support group may help too, encourage one another, you will find it is much easier to speak with people who have gone through or going to go through the same thing you are. Others (though they mean well) you will find out shortly cannot truly understand what you are going through.


REMEMBER **** FANGS OUT! **** HAIR ON FIRE!


.

Yes, all wise words indeed. I have read a bit about the side effects of these powerful drugs and it doesn't sit well with me at this present moment.
One thing i am really mulling over is the possible increase of weight loss which can occur with chemo.
Heck, i am already skinny. I was very defensive in the consultation with the doctors and replied upon hearing that i may lose more weight: "well, at least i can get rid of this f'in beer belly then".
Blank looks upon remarking this.
The other thing is the hair loss.
My self esteem has been shot a fair few months ago now. Losing all this weight i'm sure i look sick too, so i guess the hair loss is the double whammy really for me. Yes i know it grows back but where i am going with this is that the Doc said today: what work do you do"? "Hopsitality management, restaurants mainly"? He said after us ddiscussing, or rather me saying that my work can go stuff themselves because the last thing i want to have to deal with is some clown complaining about a well-done steak, when it's well done. So, he said to me, after me saying that: "you can then step back, being the manager, and delegate"! I looked at him, not sure what he was attempting to do.
I said: "no f'in way, f that, i'm not running around with a bald head, skin and bones and looking like a freak"! He replied: "well you can think of it this way, you can advertise this to other men/people, you know, tell them to check themselves regularly etc etc".
I thought to myself: "yea right, i'm gonna do that, at my work place, whilst i work"! Idiot.
I don't mind educating people in relation to this but. But when i know that i have beaten this. First things first, right?
The whole consultation disappointed me because it was rather impersonal, it was quick and the Doc that read the report hardly made eye contact with me, when he was mumbling med terms, he made more eye contact with the med student in the room, who sat in, than with me.
I felt like calling out to him and saying: "hey listen Pal. When you are discussing a possible curtain closer with me, at least make freakin eye contact with me.
Anyways, i've rambled on too much.


Too all who have replied since my last post with best wishes and messages of hope and strength and prayers, thank you!
You all seem like really nice people. I mean that.
And i will keep you all in the loop.

[frau kaleun]

I can only echo what others have said and add my own good wishes to it: stay strong, stay positive, you will be in our thoughts and prayers! Good luck to you, man.

[kiwi_2005]

Wow! I just got up and I read this. Cancer sucks, lost my mother & an uncle to cancer. 4yrs ago my brother in law had throat cancer, it was the early stages though we all thought Colin was going to die, he couldn't eat solid foods had to be liquid foods and being a roast mutton man he was terribly pissed off. He went through the lost of weight, hair lost, being sick a lot due to the chemo but at the end he recovered and is now back to his normal self & enjoying his roast dinners. Then early last year my other brotherinlaw was told by his doc he has colon cancer, he too recovered from it and he was late going to the doctors he probably wouldn't off if it wasn't for him collapsing while at work. They both have to have their check ups just in case the cancer ever returns though they both in good spirits.

There is still hope Feuer Frei! The doctors haven't given up on you so they must know there is still a good chance of you beating this cancer. I hope the very best for you man.

Try to stay positive.

[Rockstar]

Yes, all wise words indeed. I have read a bit about the side effects of these powerful drugs and it doesn't sit well with me at this present moment.
One thing i am really mulling over is the possible increase of weight loss which can occur with chemo.
Heck, i am already skinny. I was very defensive in the consultation with the doctors and replied upon hearing that i may lose more weight: "well, at least i can get rid of this f'in beer belly then".
Blank looks upon remarking this.

Ah the doctors, we had one doctor at radiation the fella I spoke of above, great guy he always encouraged and took care of my wife, an older gentleman and experienced doctor, but you could tell he still drew a line and knew not to get too close. But the others the younger ones, I could describe them just as you did yours. I know nursing staff who administer the chemo are always being watched and cautioned against getting too personal, it's hard not to, they are always being rotated out. It may be the case with your doctors they may be experts in the field of medicine but young and may severely lack in the human relations side of the job.

The other thing is the hair loss.
My self esteem has been shot a fair few months ago now. Losing all this weight i'm sure i look sick too, so i guess the hair loss is the double whammy really for me. Yes i know it grows back but where i am going with this is that the Doc said today: what work do you do"? "Hopsitality management, restaurants mainly"? He said after us ddiscussing, or rather me saying that my work can go stuff themselves because the last thing i want to have to deal with is some clown complaining about a well-done steak, when it's well done. So, he said to me, after me saying that: "you can then step back, being the manager, and delegate"! I looked at him, not sure what he was attempting to do.
I said: "no f'in way, f that, i'm not running around with a bald head, skin and bones and looking like a freak"! He replied: "well you can think of it this way, you can advertise this to other men/people, you know, tell them to check themselves regularly etc etc".
I thought to myself: "yea right, i'm gonna do that, at my work place, whilst i work"! Idiot.
I don't mind educating people in relation to this but. But when i know that i have beaten this. First things first, right?

You sound familiar, my wife wasn't interested in becoming a martyr for the cause either. You're right first things first which is you. I suggest though you covet your life's routine and do everything you can to not let this affect it. Again I strongly suggest you find a group you have something in common with, they are out there.


Feel like rambling? then ramble on. I don't think anyone here minds and I for one encourage it.

[Paul Riley]

I am very sorry for you.
Can I just ask you how big this 'lump' was? I have heard people I know say they had a lump in their scrotum the size of a pea,is this about right,and was there any pain or discomfort in the area,also,were there any other side effects that made you curious that something may be wrong here?
Best of luck mate,and for the future

[Gerald]

I hope for a speedy recovery, and that all goes well!

[mookiemookie]

Stay strong. You'll be in my thoughts.

[Herr-Berbunch]

I don't know what else to add to all the above posts, other than, thank you for the warning - one that gets repeatedly ignored all the time, and really shouldn't.

Again, not the praying kind, but you are in my thoughts and have my sincerest best wishes.

[Magic1111]

Originally Posted by Feuer Frei!

Ich bin 39 Jahre alt. Eigentlich recht jung, aber habe gehöhrt das das ganz normal ist in dem Alter.
Niemals aufgeben, tja, da haben Sie recht. Anders werde das nich gehen mit diesem Fall.
Danke für Deine Worte. Jetzt im Moment bin ich shell-shocked. Weiss nicht was ich machen soll.
So viele Gedanken rennen im Kopf herum.
Ich bete zu unserem Herrn, der kann mir bestimmt helfen! Ich brauche Seine Hilfe jetzt.
Ich halte Dich am Laufenden. Danke nochmahls.

Hi !

Dann sind wir im gleichem Alter, ich werde im August 39 Jahre !

Bis Du Christ ? Ich ja, daher bete ich und tue das bitte auch ! ER wird Dir, so Gott will, helfen !!!

Ja, halte mich bitte auf dem Laufenden !

Alles Liebe und Gute,

Thomas

@ All: Sorry, I can this better express in my Mother-Language, therefore I write this in german words !

[Jimbuna]

Every best wish for a positive and successful outcome

[Feuer Frei!]

Originally Posted by Paul Riley

I am very sorry for you.
Can I just ask you how big this 'lump' was? I have heard people I know say they had a lump in their scrotum the size of a pea,is this about right,and was there any pain or discomfort in the area,also,were there any other side effects that made you curious that something may be wrong here?
Best of luck mate,and for the future

The lump was quiete big, if you can imagine the size of half an egg. It was tender but no signs otherwise of pain.
I guess in relation to signs or symptoms it's hard to ascertain with me because i was losing weight and had a few other symptoms which i thought were all attributed to this tumour.
Dull lower back pains, hunger pains, 2 to 3 hours after eating a full meal, reflux.
All these symptoms still exist, even after the removal.
Which begs me to believe that the cancer cell(s) are still present.
The symptoms have not disappeared.
No weight gain, it's going the opposite. reflux still there. Hunger pains still there.
In relation to the size of a pea, it is important that any sign of lumps, anywhere, must be checked immediately by the GP.
Rather be safe than sorry, right?
Thank you for your well wishes.

Originally Posted by Magic1111

Hi !

Dann sind wir im gleichem Alter, ich werde im August 39 Jahre !

Bis Du Christ ? Ich ja, daher bete ich und tue das bitte auch ! ER wird Dir, so Gott will, helfen !!!

Ja, halte mich bitte auf dem Laufenden !

Alles Liebe und Gute,

Thomas

@ All: Sorry, I can this better express in my Mother-Language, therefore I write this in german words !

Ich bin Christ Thomas.
Danke nochmals für alles.

And to all who have posted best wishes since my last thank you, i thank you.
I hope to hear from the Oncology Department today.

[Reece]

If you haven't got it might pay to get a cheap laptop with wifi, might come in handy, you'll need an internet connection with access to Subsim!!

[Magic1111]

Originally Posted by Feuer Frei!

Ich bin Christ Thomas.
Danke nochmals für alles.

Guten Morgen !

Dafür nichts zu danken, ist doch selbstverständlich !

Bis dann, bin in Gedanken bei Dir mein Freund !

Viele Grüße,
Thomas

[Feuer Frei!]

Originally Posted by Flaxpants

I'm going to get back to you on this FF, I haven't seen him for a few years now and am not clear on the details, all I am sure about is that he is extremely fit now- he runs a diving business. He did tell me that he was visiting Thailand this month funnily enough, but in any case I shall get in touch with him and find out his story and let you know.

No problem. I appreciate your reply and the trouble you've gone to to find out further info.

Originally Posted by Skybird

Alles Gute. Die Hoffnung nicht fahren lassen!

Danke Skybird.

Originally Posted by andritsos

[its not important if i dont know you ( even at the forums)], i wish you the very best and a speedy recovery and good support from people around you

Thank you andritsos. I am surrounding myself with good people who are taking interest in my forthcoming battle and everyone is immensely supportive.

Originally Posted by sidslotm

This need not be scary. I had a cancer 8 years ago, a very aggresive bugger that grew overnight on my neck, when I looked in the mirror to combe my hair that morning I could see the thing sticking out, about the size of a mans thumb.

I have a very good friend who came to see me when he found out about this. We sat and talking for several hours and gradually my friend convinced me I was going to live, and I did I'm happy to say.

After I went through the operation, the chemo and radio therapy was over, for a reason I will never fully understand, I hit what I can only describe as a "high" it lasted about five years and in that time I excercised everyday by simple walking. I stopped drinking and smoking and concentrated on my health my staying within the "high".

I was 55 when cancer hit me, I forgot about work completely and stayed focused on living. The human Spirit is a wonderfull thing, but must be guarded. I walked away from everything and anything that demoralised or attemped to suck away my will to live, I hung on to "I believe I will live" which I kept telling myself as I walking everyday.

Survival rates have never been better and there is every likeyhood that your going to survive and lead a full and active life.

That is great news for you. I am happy for you. And you are another success story. I can take heart from that.

Originally Posted by Castout

Yeah my late grandmother suffered similar to your mother as well. But she was more than 80 year old then. She was so thin because she was eating less and less saying that she was never hungry. In the end she lost her fight to a flu. I still miss her. I actually had a reliable information she was going to be taken away from us about 2 months before she even got sick(I've had quite a few of that in my life. All three all accurate. All ahead of time). I refused to believe it until she got sick. I hope I'll see her again when my time is due. She was dear to me.

Edit:
Don't worry about how you are going to look worse fighting this cancer. That should be the least of your concern. Don't burden your immune system with needless worrying. Just concentrate on beating this and only then on recovering. No one in their sane mind would judge how well you look when you're battling cancer.

Yes, the physical appearance thing worries me greatly although i need to as you say, focus on more important things.
I think it will hit me once chemo starts and i start exhibiting the side effects.
But that is open to conjecture, i guess every person is different and ie reacts to chemo differently.

Originally Posted by Magic1111

Guten Morgen !

Dafür nichts zu danken, ist doch selbstverständlich !

Bis dann, bin in Gedanken bei Dir mein Freund !

Viele Grüße,
Thomas

Hallo Thomas,
wie geht's?
Viele Grüße.

Update:
I rang the Oncology today to see if i can fast-track the appointment date. And to find out when it all begins. They said they hadn't received any referral at all. Either that or they couldn't find it. Ah. This is a good start to the next 6 mths! Is this jinxed from the start?
The receptionist was very helpful and said she would call me back within half an hour to advise further. Low and behold, i received the phone call and was advised that the referral had been located and i will receive a phone call tomorrow, Friday for an appointment date.
I think overall this will all sink in properly once i lay on the hospital bed with a drip in my arm and watching the minutes and the hours tick by.
Thank you all for your support so far, more to follow.