Parents Simple Gesture in Memory of Daughter Pays Off Big

[vienna]

I just found this interesting and moving:


http://shine.yahoo.com/ellen-good-ne...221300973.html


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[Wolferz]

Originally Posted by vienna

I just found this interesting and moving:


http://shine.yahoo.com/ellen-good-ne...221300973.html


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Agreed Seizures are no fun whatsoever. I've had one and worked with epileptic kids in the past. The chances of those kids having a fatal seizure was pre-empted by training of all staff in how to respond. Up to and including giving injections of anti-seizure meds.

My seizure occurred while sitting in this very chair. It was strange and frightening when you consider what would have happened f I was behind the wheel of my truck. My left hand began rapidly opening and closing without any conscious input from me. Then It felt like I had been poked in the ribs with a cattle prod and I lost consciousness. Woke up later in the back of an ambulance with the EMT repeatedly asking me what my name was. To which I repeatedly responded "puddintame" When she asked me what the date was, I drew a blank.

[vienna]

I had a sister who, among other disabilities, had epilepsy. She would have Grand Mal seizures, quite frequently when she was younger, less frequently later in her life. Her seizures were a bit unusual in that they were most often "silent" seizures; she would make little to no noise or sound during her seizures. She would go through violent convulsions and, unless you were looking at her or somehow noticed her, you wouldn't know she was suffering. My mother and I would literally sleep with an alert ear in order to attend to her if she had a seizure at night. This constant vigilance caused me to grow up very conscious of even the smallest distubances around me. I would sometimes freak people out by saying someone was coming before they arrived because I noted some small sound or disruption missed by the person I was with at the time. I was often even able to "know" if my sister had a seizure when we were apart and I was at, say, school or work. I would suddenly "sense" something while at work, call home, and my mother would confirm my sister had had another seizure. Epilepsy, especially severe cases, can be a cause of suffering for not only the person having the seizures, but. also, their families and friends. I have known a few other persons with the disorder and have been fortunate to be able to help a few strangers who had seizures in public. There is something very sobering and life-leveling in knowing that if a person is having an serious epileptic seizure, it may be their last moment of life. I hope you have not had anymore serious episodes like your fisrt one...

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[Jimbuna]

I've watched my nephew grow up from being a toddler and coping with epilepsy....thankfully they are fewer now as he ages.