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Feuer Frei!
07-19-11, 10:56 PM
Well, where do i start? I thought this over a lot, of wether i should post this here.
Reasons are that i believe that the condition of my health is no-one elses' business, and another reason is that none of you have ever met me.
However, after some deliberation i thought that i would post this, in the hope that the male members of SUBSIM can perhaps learn from this and it is vitally important for self-examination.
Now, what is all this about you ask?
Today has been the very worst part of my life, at 09:30 this morning, my time, i had a follow-up consultation at the hospital, after the removal of a Testicular tumour, that it is malignant, ie cancer, and that i will need chemo therapy.
There was a battery of tests done in the lead-up to this, due to the fact that i had been losing weight steadily over the last 10 to 12 mths.
Unfortunately, upon noticing a lump in my testicle, i did not immediately consult my GP.
I played with fire there.
Obviously. I advised the GP about a month ago of this and he immediately ordered an ultra sound of the region.
Result: Tumour, possibly cancerous.
Great. We move on to the ordering of Upper Body x-rays to determine if this has spread.
Result: Most probably not, a slight doubt exists at present in my stomach, however the Doctor has stated this is not to be upset about.
Next, operation to remove tumour and ie the loss of testicle.
Result: Where we are now, the morning after the follow-up.
I have cancer. Has this sunk in? Yes and no.
I'm not sure at what stage i am right now, denial? No, far from it. Acceptance: Yes, although to what level?
The Doctors who gave the me news at the hospital today could not and would not speculate on chemo therapy and it's consequences.
Side effects? Oh, i'm aware of them.
Procedure? In my case it will be via injection, quickest route to the system, right?
The Oncology Dept will inform me of the strength of the treatment, ie a localised one or the full barage/dose.
And over what time period.
I have informed my parents, well, my dad to be precise because my Mother is suffering from Dementia, and that is getting worse by the day. She hardly eats nowadays, i haven't seen my mother in over 2 years and of what my dad tells me of her now, in what state she is in, it breaks me in two.
I have memories of my mother fit and jovial, always humerous and up and about at 7am in the morning, working daily chores and cooking, etc etc.
This is not fair!
Now this.
There are a miriad of thoughts that have entered my mind.
From the most positive: "it'll be fine, it'll be localised treatment, and i will go into remission and i'll see improvements, to:" i will never ever get a chance to go into remission, the chemo has/is failing, we are losing, i am sorry to inform you Mr Feuer Frei! but you have x amount of time left to live".
People are supportive, of course they are.
What are they going to say?
What about my kids?
My 3 beeautiful daughters? Well, 2 of them are too young too understand.
My eldest is 8, she would but, no point in telling her anything until chemo has worked. Or hasn't.
I am chain-smoking, have been for the last 3 weeks. My work has been supportive, have not worked for the last 3 weeks due to the operation and the follow-up.
Now this.
Well, it's a wall of text, i know.
Some deep and dark stuff written here, i am sorry if this depresses anyone, it is not meant to distress or offend or fish for sympathy. Far from it. It is to make the men aware that we need to be aware of things like this, and if in doubt, talk to your GP. Much earlier than what i did.
I will pray to God. For that is all i can do now. I just hope i didn't leave the self-examination too late. Hindsight is a luxury right?
:salute:

Sailor Steve
07-19-11, 11:11 PM
Oh, man, that is bad. I hope it turns out alright, not just for your sake but for your kids. They need their dad to be with them forever. I can't pray, but I can hope and wish you a full recovery.

antikristuseke
07-19-11, 11:35 PM
Wish you a speedy recovery and courage in your process of kicking the cancers ass.

Falkirion
07-20-11, 12:20 AM
Good luck mate. We await some good news. You deserve to catch a break after all this.

Reece
07-20-11, 01:37 AM
That is just suck news mate, the big "C" is the most dreaded thing next to Dementia, I watched my mother go through that and was very sad indeed.:wah:
Hopefully you have a speedy recovery/cure,:oops::cry: I will pray for you.
Keep up the chin! Reece.

Tribesman
07-20-11, 01:45 AM
Bugger.

Good Luck FF:salute:

Dowly
07-20-11, 01:52 AM
Hope all goes well and speedy recovery. :salute:

Feuer Frei!
07-20-11, 02:16 AM
Thanks for the well wishes guys.
I have been looking at this fact sheet about Chemo from the hospital, some scary stuff:

https://www.eviq.org.au/LinkClick.aspx?fileticket=Tm6SYuw7dxs%3d&tabid=156

Dam. :doh:
I'm going to be out of action for at least 3 months+ another 3 to 4 mths on top of that for recuperation. If i get that far.
Scheisse!

Magic1111
07-20-11, 02:28 AM
Hi FF !

Es tut mir so unendlich leid für Dich, wünsche Dir von Herzen das aller, aller Beste ! Und ich bete für Dich !

Jetzt mach bitte genau das, was immer auf Deiner Signatur steht:

"Niemals aufgeben" !!!

Viele Grüße,
Thomas ("Magic")

P.S.: Wie alt bist Du eigentlich ?

Matador.es
07-20-11, 02:44 AM
auwch, that is shokking. It suddanly brings back thoughts we all rather would not recollect i guess. Wish you all the strenght and resilience needed

Anthony W.
07-20-11, 02:58 AM
Praying for you, man

Flaxpants
07-20-11, 03:05 AM
All the best to you mate, I will watch for news of your progress- lots of support around here.

A friend of mine had the same thing, he's all over it now and is back to his usual life, got a clear bill of health- look forward to you telling us the same.

F

HunterICX
07-20-11, 03:42 AM
That's indeed bad news and with that treatment it'll be the fight of your life.

All the best of luck and hope you make a full recovery.

HunterICX

Castout
07-20-11, 04:34 AM
Oh man you are in my thoughts now and will be in my prayer.

Stay strong. Somehow I got the impression that you're a good person.

Stay cheerful with what life throws at you mate. I really do hope all will be okay in the end.

Sorry to hear about your mother condition. Nevertheless do visit her. You can't if she was gone.

papa_smurf
07-20-11, 04:46 AM
Heres to a full recovery, hope to god I never find a lump down there. Athough I did have a scare last year when I felt lumps under my left arm pit, went straight to my GP and fortunately it was just my lymph nodes were inflamed and went after a few days - still feared the worst and glad it wasn't cancer.

Torvald Von Mansee
07-20-11, 06:13 AM
Good luck!!!

ReFaN
07-20-11, 06:24 AM
i wish you well, and hoping it turns out well.

Garion
07-20-11, 06:45 AM
Keep yer chin up, think positive thoughts and stay strong. Easy to say I know, but it's a must.

My thoughts are with yoo.

Cheers

Garion

Rockstar
07-20-11, 06:55 AM
Feuer Frei! It pains me to no end to have to hear this. I wish there was some magic pill which take it all away but there isn't one, yet. But modern medicine believe it or not is getting close to those things.

My wife had a very rare form of stage 2a uterine cancer, a type that IF a women gets it normally happens around the age of 80, she was 39 then. It was an aggressive cancer with a piss poor survival rate. She passed the five year mark two years ago.

From watching her deal with it. My advice would be to get on with life, don't let this upset your routine. As an example, my wife is a swimmer, loves it, in her younger days she set the Dolphin Club record in the Alcatraz swim she also used to do the Lanai to Maui swim. Anyways, the nurses would get on her about swimming because as they said there are germs in the showers and pool therefore a greater potential for infection. She told them to pack sand, she never stopped doing what loved to to do. The Dr at the time a wonderful man who took care of her very well told her to just keep on doing what you're doing and don't let others stand in the way. He now recommends swimming to all his cancer patients.

During chemo you lose your appetitie YOU MUST EAT whether you want to or not. It's been found so many people fail during this time not because of the cancer but from malnutrition. Trash the candies, donuts and sweets these will not help and only feed the cancer.

EAT HEALTHY!

Stop researching how bad this is and start researching things on how to combat this on your own like vitamin C, foods, exercise, attitude, and yes even prayer to YHWH.

Didn't Lance Armstrong have a form of testicular cancer? It can be beat don't withdraw, don't give up. Approach this with your fangs out and hair on fire!

Finding a support group may help too, encourage one another, you will find it is much easier to speak with people who have gone through or going to go through the same thing you are. Others (though they mean well) you will find out shortly cannot truly understand what you are going through.


REMEMBER **** FANGS OUT! **** HAIR ON FIRE!


.

Penguin
07-20-11, 07:18 AM
Feuer Frei,
First of all: my respect goes to you for posting this deep and sad story here. You're crazy to apologize for it - GT is somehow like real life, the funniest picture in the world and a saddening story are next to each other.

I am not ashamed to say that I had wet eyes when reading this. I can only underline Magic's words: never give up, don't even think about it.
The human mind and its inner will is amazing, it is just as important as the physical therapy. Even if, what nobody hopes, the docs put the thumb down on you: "Niemals aufgeben!" The new wife of my father once got the diagnosis lung cancer with the prognosis to have only a few months left. She made it 10 more years, because she had an amazing willpower.

Many people, including me, are sloppy regarding visiting the doc, so this is also a reminder to us all. So I'll close with a semi-funny story: I once also noticed a strange structure on one ball, the size of a pea. I was worried and went straight to the doc. She examined my testicle and I was anxious to hear the result. It took too long for me, so I pressed: "Come on, doc, tell me what it is. Is it cancer?"
She replied: "no, it's just a shaving accident. A hair grew in and cartilage grew around it!" Man konnte den Stein der mir vom Herzen fiel, kilometerweit hören! :DL
I was more than glad and my previous nervousness resulted into deep, happy laughter. I felt stupid for panicing and running to the doc who has to treat real illnesses. Well, in hindsight I now say: better one check-up too much.
Good that you finally went to the doc and as it looks now, the diagnosis does not sound hopeless.

So: Alle meine besten Wünsche gehen an dich!
Viel Kraft für die nächsten Monate!
You're a good guy, don't kick the bucket before we met us and had a few pints! We all support you here!

Cheers! :salute:

Takeda Shingen
07-20-11, 07:32 AM
There is simply nothing that can be said to you that would not sound quaint or foolish. Please know that you will be in my thoughts over the course of your battle. My mother sucummed to cancer, so I understand your agony and that of your loved ones. It is my greatest hope that you will be well again soon.

GoldenRivet
07-20-11, 07:44 AM
read that with mouth agape.

sorry to hear it.

you will be in thoughts and prayers

Feuer Frei!
07-20-11, 07:47 AM
Hi FF !

Es tut mir so unendlich leid für Dich, wünsche Dir von Herzen das aller, aller Beste ! Und ich bete für Dich !

Jetzt mach bitte genau das, was immer auf Deiner Signatur steht:

"Niemals aufgeben" !!!

Viele Grüße,
Thomas ("Magic")

P.S.: Wie alt bist Du eigentlich ?
Ich bin 39 Jahre alt. Eigentlich recht jung, aber habe gehöhrt das das ganz normal ist in dem Alter.
Niemals aufgeben, tja, da haben Sie recht. Anders werde das nich gehen mit diesem Fall.
Danke für Deine Worte. Jetzt im Moment bin ich shell-shocked. Weiss nicht was ich machen soll.
So viele Gedanken rennen im Kopf herum.
Ich bete zu unserem Herrn, der kann mir bestimmt helfen! Ich brauche Seine Hilfe jetzt.
Ich halte Dich am Laufenden. Danke nochmahls. :salute:



All the best to you mate, I will watch for news of your progress- lots of support around here.

A friend of mine had the same thing, he's all over it now and is back to his usual life, got a clear bill of health- look forward to you telling us the same.

Thanks m8, did your friend go through chemo? How long for?
3 months is the minimum i have heard, and the fact sheet i linked earlier indicates that too.
Was there any weight loss? With him? The Doctors said that that is one of the side effects. But then i don't know what to believe, because in some people it makes them gain weight. That is due to the steroid tablet/injection.

Oh man you are in my thoughts now and will be in my prayer.

Stay strong. Somehow I got the impression that you're a good person.

Stay cheerful with what life throws at you mate. I really do hope all will be okay in the end.

Sorry to hear about your mother condition. Nevertheless do visit her. You can't if she was gone.
Thank you Castout. Thank you for your prayers and kind words.
My mother is gradually getting worse.
The norm is nowadays that she sleeps until midday, she may get up before then and complain about pains and she says she has no hunger for food, so she goes back to bed.
It is a habit with her now. Repeating things often, loss of memory, not remembering what she said previously, or seeking words to describe something.
All signs of early onset of Dementia.
My father is fast coming to the conclusion that outside intervention is needed. He is not sure how to handle the situation anymore. She has lost a lot of weight due to not eating much anymore. Once that happens it is getting difficult.
I spoke to my Mother a week ago, and it was a harrowing experience, to say the least.
I was emotional but did not show signs of it towards her.
Inwardly emotional.
It really touches you when a loved one is slipping down a deep slope like this.


Heres to a full recovery, hope to god I never find a lump down there. Athough I did have a scare last year when I felt lumps under my left arm pit, went straight to my GP and fortunately it was just my lymph nodes were inflamed and went after a few days - still feared the worst and glad it wasn't cancer.
Good news sir! I'm happy it was a false alarm.
It pays to get things checked out doesn't it?

Feuer Frei! It pains me to no end to have to hear this. I wish there was some magic pill which take it all away but there isn't one, yet. But modern medicine believe it or not is getting close to those things.

My wife had a very rare form of stage 2a uterine cancer, a type that IF a women gets it normally happens around the age of 80, she was 39 then. It was an aggressive cancer with a piss poor survival rate. She passed the five year mark two years ago.
My God, that is young. But, great news for you and your wife!
Good on her. She's a fighter.

From watching her deal with it. My advice would be to get on with life, don't let this upset your routine. As an example, my wife is a swimmer, loves it, in her younger days she set the Dolphin Club record in the Alcatraz swim she also used to do the Lanai to Maui swim. Anyways, the nurses would get on her about swimming because as they said there are germs in the showers and pool therefore a greater potential for infection. She told them to pack sand, she never stopped doing what loved to to do. The Dr at the time a wonderful man who took care of her very well told her to just keep on doing what you're doing and don't let others stand in the way. He now recommends swimming to all his cancer patients.

During chemo you lose your appetitie YOU MUST EAT whether you want to or not. It's been found so many people fail during this time not because of the cancer but from malnutrition. Trash the candies, donuts and sweets these will not help and only feed the cancer.

EAT HEALTHY!

Stop researching how bad this is and start researching things on how to combat this on your own like vitamin C, foods, exercise, attitude, and yes even prayer to YHWH.

Didn't Lance Armstrong have a form of testicular cancer? It can be beat don't withdraw, don't give up. Approach this with your fangs out and hair on fire!

Finding a support group may help too, encourage one another, you will find it is much easier to speak with people who have gone through or going to go through the same thing you are. Others (though they mean well) you will find out shortly cannot truly understand what you are going through.


REMEMBER **** FANGS OUT! **** HAIR ON FIRE!


.
Yes, all wise words indeed. I have read a bit about the side effects of these powerful drugs and it doesn't sit well with me at this present moment.
One thing i am really mulling over is the possible increase of weight loss which can occur with chemo.
Heck, i am already skinny. I was very defensive in the consultation with the doctors and replied upon hearing that i may lose more weight: "well, at least i can get rid of this f'in beer belly then".
Blank looks upon remarking this.
The other thing is the hair loss.
My self esteem has been shot a fair few months ago now. Losing all this weight i'm sure i look sick too, so i guess the hair loss is the double whammy really for me. Yes i know it grows back but where i am going with this is that the Doc said today: what work do you do"? "Hopsitality management, restaurants mainly"? He said after us ddiscussing, or rather me saying that my work can go stuff themselves because the last thing i want to have to deal with is some clown complaining about a well-done steak, when it's well done. So, he said to me, after me saying that: "you can then step back, being the manager, and delegate"! I looked at him, not sure what he was attempting to do.
I said: "no f'in way, f that, i'm not running around with a bald head, skin and bones and looking like a freak"! He replied: "well you can think of it this way, you can advertise this to other men/people, you know, tell them to check themselves regularly etc etc".
I thought to myself: "yea right, i'm gonna do that, at my work place, whilst i work"! Idiot.
I don't mind educating people in relation to this but. But when i know that i have beaten this. First things first, right?
The whole consultation disappointed me because it was rather impersonal, it was quick and the Doc that read the report hardly made eye contact with me, when he was mumbling med terms, he made more eye contact with the med student in the room, who sat in, than with me.
I felt like calling out to him and saying: "hey listen Pal. When you are discussing a possible curtain closer with me, at least make freakin eye contact with me.
Anyways, i've rambled on too much.


Too all who have replied since my last post with best wishes and messages of hope and strength and prayers, thank you!
You all seem like really nice people. I mean that.
And i will keep you all in the loop.

frau kaleun
07-20-11, 08:20 AM
I can only echo what others have said and add my own good wishes to it: stay strong, stay positive, you will be in our thoughts and prayers! Good luck to you, man.

kiwi_2005
07-20-11, 09:25 AM
Wow! I just got up and I read this. Cancer sucks, lost my mother & an uncle to cancer. 4yrs ago my brother in law had throat cancer, it was the early stages though we all thought Colin was going to die, he couldn't eat solid foods had to be liquid foods and being a roast mutton man he was terribly pissed off. He went through the lost of weight, hair lost, being sick a lot due to the chemo but at the end he recovered and is now back to his normal self & enjoying his roast dinners.:) Then early last year my other brotherinlaw was told by his doc he has colon cancer, he too recovered from it and he was late going to the doctors he probably wouldn't off if it wasn't for him collapsing while at work. They both have to have their check ups just in case the cancer ever returns though they both in good spirits.

There is still hope Feuer Frei! The doctors haven't given up on you so they must know there is still a good chance of you beating this cancer. I hope the very best for you man.

Try to stay positive.

August
07-20-11, 09:31 AM
Good luck man. Hope you beat it.

Rockstar
07-20-11, 09:52 AM
Yes, all wise words indeed. I have read a bit about the side effects of these powerful drugs and it doesn't sit well with me at this present moment.
One thing i am really mulling over is the possible increase of weight loss which can occur with chemo.
Heck, i am already skinny. I was very defensive in the consultation with the doctors and replied upon hearing that i may lose more weight: "well, at least i can get rid of this f'in beer belly then".
Blank looks upon remarking this.Ah the doctors, we had one doctor at radiation the fella I spoke of above, great guy he always encouraged and took care of my wife, an older gentleman and experienced doctor, but you could tell he still drew a line and knew not to get too close. But the others the younger ones, I could describe them just as you did yours. I know nursing staff who administer the chemo are always being watched and cautioned against getting too personal, it's hard not to, they are always being rotated out. It may be the case with your doctors they may be experts in the field of medicine but young and may severely lack in the human relations side of the job.


The other thing is the hair loss.
My self esteem has been shot a fair few months ago now. Losing all this weight i'm sure i look sick too, so i guess the hair loss is the double whammy really for me. Yes i know it grows back but where i am going with this is that the Doc said today: what work do you do"? "Hopsitality management, restaurants mainly"? He said after us ddiscussing, or rather me saying that my work can go stuff themselves because the last thing i want to have to deal with is some clown complaining about a well-done steak, when it's well done. So, he said to me, after me saying that: "you can then step back, being the manager, and delegate"! I looked at him, not sure what he was attempting to do.
I said: "no f'in way, f that, i'm not running around with a bald head, skin and bones and looking like a freak"! He replied: "well you can think of it this way, you can advertise this to other men/people, you know, tell them to check themselves regularly etc etc".
I thought to myself: "yea right, i'm gonna do that, at my work place, whilst i work"! Idiot.
I don't mind educating people in relation to this but. But when i know that i have beaten this. First things first, right?You sound familiar, my wife wasn't interested in becoming a martyr for the cause either. You're right first things first which is you. I suggest though you covet your life's routine and do everything you can to not let this affect it. Again I strongly suggest you find a group you have something in common with, they are out there.


Feel like rambling? then ramble on. I don't think anyone here minds and I for one encourage it.

Paul Riley
07-20-11, 10:07 AM
I am very sorry for you.
Can I just ask you how big this 'lump' was? I have heard people I know say they had a lump in their scrotum the size of a pea,is this about right,and was there any pain or discomfort in the area,also,were there any other side effects that made you curious that something may be wrong here?
Best of luck mate,and for the future :sunny:

Gerald
07-20-11, 10:33 AM
I hope for a speedy recovery, and that all goes well!

mookiemookie
07-20-11, 10:38 AM
Stay strong. You'll be in my thoughts.

Herr-Berbunch
07-20-11, 10:44 AM
I don't know what else to add to all the above posts, other than, thank you for the warning - one that gets repeatedly ignored all the time, and really shouldn't.

Again, not the praying kind, but you are in my thoughts and have my sincerest best wishes.

vienna
07-20-11, 02:30 PM
I wish the best for you and don't ever give up hope; I've known a few poeple who have had cancer and have beaten it. I'm sure you will, too...

Magic1111
07-20-11, 03:45 PM
Ich bin 39 Jahre alt. Eigentlich recht jung, aber habe gehöhrt das das ganz normal ist in dem Alter.
Niemals aufgeben, tja, da haben Sie recht. Anders werde das nich gehen mit diesem Fall.
Danke für Deine Worte. Jetzt im Moment bin ich shell-shocked. Weiss nicht was ich machen soll.
So viele Gedanken rennen im Kopf herum.
Ich bete zu unserem Herrn, der kann mir bestimmt helfen! Ich brauche Seine Hilfe jetzt.
Ich halte Dich am Laufenden. Danke nochmahls. :salute:


Hi !

Dann sind wir im gleichem Alter, ich werde im August 39 Jahre !

Bis Du Christ ? Ich ja, daher bete ich und tue das bitte auch ! ER wird Dir, so Gott will, helfen !!!

Ja, halte mich bitte auf dem Laufenden !

Alles Liebe und Gute,

Thomas:salute:

@ All: Sorry, I can this better express in my Mother-Language, therefore I write this in german words !

Jimbuna
07-20-11, 03:47 PM
Every best wish for a positive and successful outcome http://www.psionguild.org/forums/images/smilies/wolfsmilies/thumbsup.gif

Feuer Frei!
07-20-11, 06:48 PM
I am very sorry for you.
Can I just ask you how big this 'lump' was? I have heard people I know say they had a lump in their scrotum the size of a pea,is this about right,and was there any pain or discomfort in the area,also,were there any other side effects that made you curious that something may be wrong here?
Best of luck mate,and for the future :sunny:
The lump was quiete big, if you can imagine the size of half an egg. It was tender but no signs otherwise of pain.
I guess in relation to signs or symptoms it's hard to ascertain with me because i was losing weight and had a few other symptoms which i thought were all attributed to this tumour.
Dull lower back pains, hunger pains, 2 to 3 hours after eating a full meal, reflux.
All these symptoms still exist, even after the removal.
Which begs me to believe that the cancer cell(s) are still present.
The symptoms have not disappeared.
No weight gain, it's going the opposite. reflux still there. Hunger pains still there.
In relation to the size of a pea, it is important that any sign of lumps, anywhere, must be checked immediately by the GP.
Rather be safe than sorry, right?
Thank you for your well wishes.

Hi !

Dann sind wir im gleichem Alter, ich werde im August 39 Jahre !

Bis Du Christ ? Ich ja, daher bete ich und tue das bitte auch ! ER wird Dir, so Gott will, helfen !!!

Ja, halte mich bitte auf dem Laufenden !

Alles Liebe und Gute,

Thomas:salute:

@ All: Sorry, I can this better express in my Mother-Language, therefore I write this in german words !
Ich bin Christ Thomas.
Danke nochmals für alles.

And to all who have posted best wishes since my last thank you, i thank you.
I hope to hear from the Oncology Department today.

Reece
07-20-11, 07:16 PM
If you haven't got it might pay to get a cheap laptop with wifi, might come in handy, you'll need an internet connection with access to Subsim!!:yep:

Flaxpants
07-21-11, 01:33 AM
Thanks m8, did your friend go through chemo? How long for?
3 months is the minimum i have heard, and the fact sheet i linked earlier indicates that too.
Was there any weight loss? With him? The Doctors said that that is one of the side effects. But then i don't know what to believe, because in some people it makes them gain weight. That is due to the steroid tablet/injection

I'm going to get back to you on this FF, I haven't seen him for a few years now and am not clear on the details, all I am sure about is that he is extremely fit now- he runs a diving business. He did tell me that he was visiting Thailand this month funnily enough, but in any case I shall get in touch with him and find out his story and let you know.:DL

Skybird
07-21-11, 01:52 AM
Alles Gute. Die Hoffnung nicht fahren lassen!

andritsos
07-21-11, 01:58 AM
[its not important if i dont know you ( even at the forums)], i wish you the very best and a speedy recovery and good support from people around you

sidslotm
07-21-11, 02:20 AM
have been looking at this fact sheet about Chemo from the hospital, some scary stuff:



This need not be scary. I had a cancer 8 years ago, a very aggresive bugger that grew overnight on my neck, when I looked in the mirror to combe my hair that morning I could see the thing sticking out, about the size of a mans thumb.

I have a very good friend who came to see me when he found out about this. We sat and talking for several hours and gradually my friend convinced me I was going to live, and I did I'm happy to say.

After I went through the operation, the chemo and radio therapy was over, for a reason I will never fully understand, I hit what I can only describe as a "high" it lasted about five years and in that time I excercised everyday by simple walking. I stopped drinking and smoking and concentrated on my health my staying within the "high".

I was 55 when cancer hit me, I forgot about work completely and stayed focused on living. The human Spirit is a wonderfull thing, but must be guarded. I walked away from everything and anything that demoralised or attemped to suck away my will to live, I hung on to "I believe I will live" which I kept telling myself as I walking everyday.

Survival rates have never been better and there is every likeyhood that your going to survive and lead a full and active life.

Castout
07-21-11, 02:31 AM
Thank you Castout. Thank you for your prayers and kind words.
My mother is gradually getting worse.
The norm is nowadays that she sleeps until midday, she may get up before then and complain about pains and she says she has no hunger for food, so she goes back to bed.
It is a habit with her now. Repeating things often, loss of memory, not remembering what she said previously, or seeking words to describe something.
All signs of early onset of Dementia.
My father is fast coming to the conclusion that outside intervention is needed. He is not sure how to handle the situation anymore. She has lost a lot of weight due to not eating much anymore. Once that happens it is getting difficult.
I spoke to my Mother a week ago, and it was a harrowing experience, to say the least.
I was emotional but did not show signs of it towards her.
Inwardly emotional.
It really touches you when a loved one is slipping down a deep slope like this.


Yeah my late grandmother suffered similar to your mother as well. But she was more than 80 year old then. She was so thin because she was eating less and less saying that she was never hungry. In the end she lost her fight to a flu. I still miss her. I actually had a reliable information she was going to be taken away from us about 2 months before she even got sick(I've had quite a few of that in my life. All three all accurate. All ahead of time). I refused to believe it until she got sick. I hope I'll see her again when my time is due. She was dear to me.

Edit:
Don't worry about how you are going to look worse fighting this cancer. That should be the least of your concern. Don't burden your immune system with needless worrying. Just concentrate on beating this and only then on recovering. No one in their sane mind would judge how well you look when you're battling cancer.

Magic1111
07-21-11, 03:38 AM
Ich bin Christ Thomas.
Danke nochmals für alles.



Guten Morgen !

Dafür nichts zu danken, ist doch selbstverständlich !

Bis dann, bin in Gedanken bei Dir mein Freund !

Viele Grüße,
Thomas

Feuer Frei!
07-21-11, 04:08 AM
I'm going to get back to you on this FF, I haven't seen him for a few years now and am not clear on the details, all I am sure about is that he is extremely fit now- he runs a diving business. He did tell me that he was visiting Thailand this month funnily enough, but in any case I shall get in touch with him and find out his story and let you know.:DL
No problem. I appreciate your reply and the trouble you've gone to to find out further info.

Alles Gute. Die Hoffnung nicht fahren lassen!
Danke Skybird.


[its not important if i dont know you ( even at the forums)], i wish you the very best and a speedy recovery and good support from people around you
Thank you andritsos. I am surrounding myself with good people who are taking interest in my forthcoming battle and everyone is immensely supportive.

This need not be scary. I had a cancer 8 years ago, a very aggresive bugger that grew overnight on my neck, when I looked in the mirror to combe my hair that morning I could see the thing sticking out, about the size of a mans thumb.

I have a very good friend who came to see me when he found out about this. We sat and talking for several hours and gradually my friend convinced me I was going to live, and I did I'm happy to say.

After I went through the operation, the chemo and radio therapy was over, for a reason I will never fully understand, I hit what I can only describe as a "high" it lasted about five years and in that time I excercised everyday by simple walking. I stopped drinking and smoking and concentrated on my health my staying within the "high".

I was 55 when cancer hit me, I forgot about work completely and stayed focused on living. The human Spirit is a wonderfull thing, but must be guarded. I walked away from everything and anything that demoralised or attemped to suck away my will to live, I hung on to "I believe I will live" which I kept telling myself as I walking everyday.

Survival rates have never been better and there is every likeyhood that your going to survive and lead a full and active life.
That is great news for you. I am happy for you. And you are another success story. I can take heart from that.

Yeah my late grandmother suffered similar to your mother as well. But she was more than 80 year old then. She was so thin because she was eating less and less saying that she was never hungry. In the end she lost her fight to a flu. I still miss her. I actually had a reliable information she was going to be taken away from us about 2 months before she even got sick(I've had quite a few of that in my life. All three all accurate. All ahead of time). I refused to believe it until she got sick. I hope I'll see her again when my time is due. She was dear to me.

Edit:
Don't worry about how you are going to look worse fighting this cancer. That should be the least of your concern. Don't burden your immune system with needless worrying. Just concentrate on beating this and only then on recovering. No one in their sane mind would judge how well you look when you're battling cancer.
Yes, the physical appearance thing worries me greatly although i need to as you say, focus on more important things.
I think it will hit me once chemo starts and i start exhibiting the side effects.
But that is open to conjecture, i guess every person is different and ie reacts to chemo differently.


Guten Morgen !

Dafür nichts zu danken, ist doch selbstverständlich !

Bis dann, bin in Gedanken bei Dir mein Freund !

Viele Grüße,
Thomas
Hallo Thomas,
wie geht's?
Viele Grüße.

Update:
I rang the Oncology today to see if i can fast-track the appointment date. And to find out when it all begins. They said they hadn't received any referral at all. Either that or they couldn't find it. Ah. This is a good start to the next 6 mths! Is this jinxed from the start?
The receptionist was very helpful and said she would call me back within half an hour to advise further. Low and behold, i received the phone call and was advised that the referral had been located and i will receive a phone call tomorrow, Friday for an appointment date.
I think overall this will all sink in properly once i lay on the hospital bed with a drip in my arm and watching the minutes and the hours tick by.
Thank you all for your support so far, more to follow.

danasan
07-21-11, 05:30 AM
Hi Feuer Frei,

I am really sorry to hear that.

My girlfriend went through all the treatment with breast cancer in 2002. When she was 32 years old. Cancer does not respect any youth.

The sooner the cancer is detected, the better are the chances. So good luck, the often mentioned 5 years of risk are over in her case and she is in good condition today.

From my experience, there are a lot of questions and fears regarding the therapy before it starts. That is not only for you but your relatives as well.
I guess you chose a good hospital with good reputation and with good staff as well.

If there is a chance to, ask your doctor there, do not hide your fears and the questions you might have. But they are often too busy in the hospitals. If so, try to see the doctor you usually go to, he / she will have the answers.

Even in the last couple of years medicine made great steps forward. Chemo therapy used to be very hard, depending on what is used, how much and how often. But it does not have to be. In fact, my girlfriend would have had a different treatment today.

But the therapy is as individual as the cancer is. And we fear the most what we do not know or understand.

Feuer Frei, ich wünsche Dir das Allerbeste. Niemals aufgeben!

danasan

Feuer Frei!
07-21-11, 05:43 AM
Hi Feuer Frei,

I am really sorry to hear that.

My girlfriend went through all the treatment with breast cancer in 2002. When she was 32 years old. Cancer does not respect any youth.

The sooner the cancer is detected, the better are the chances. So good luck, the often mentioned 5 years of risk are over in her case and she is in good condition today.
Wonderful news! Your girfriend is a fighter and is strong. Great to hear.

From my experience, there are a lot of questions and fears regarding the therapy before it starts. That is not only for you but your relatives as well.
I guess you chose a good hospital with good reputation and with good staff as well.

If there is a chance to, ask your doctor there, do not hide your fears and the questions you might have. But they are often too busy in the hospitals. If so, try to see the doctor you usually go to, he / she will have the answers.
But the therapy is as individual as the cancer is. And we fear the most what we do not know or understand
I have already made a list of questions that i have for them. I will give them a barrage, i need to know the full deal here.
The unknown is a worry to all of us. But, the unknown can be even more brutal and painful and worrying if it concerns your life's outcome.

Feuer Frei, ich wünsche Dir das Allerbeste. Niemals aufgeben!
danasan
Vielen Dank danasan, Ich bin kämpferisch, bete zu Gott und
versuche jeden Tag positiv zu bleiben.

THE_MASK
07-21-11, 05:50 AM
I hope everything turns out ok , cheers sober out .

Magic1111
07-21-11, 05:58 AM
Hallo Thomas,
wie geht's?
Viele Grüße.


Hi !

Ich möchte Dir für heute noch etwas mit auf dem Weg geben: Meine Mutter (auch Christin) erkrankte 2000 an Brustkrebs, gilt heute als geheilt. Damals gab ihr u.a. diese Bibelstelle viel Halt (evtl. kennst Du sie ja):

Wir wissen aber, dass denen, die Gott lieben, alle Dinge zum Besten dienen ... (Römer 8,28)


Und Gott sagt hier: "...ALLE Dinge..."

In diesem Sinne viele liebe Grüße,

Thomas

Growler
07-21-11, 07:07 AM
FF -

You WILL survive this.

Once in awhile, all of us are confronted with our own human frailties, directly or indirectly. Some people fold, others step up. You've already stepped up.

By the sound of it, you have three of the best reasons I can think of for a man to step up. You are fighting for your daughters, your family... and, when it's all said and done, you fight for yourself.

Now the bad news. I know it's a habit, a stress-response, a nerve-soother, but you must QUIT SMOKING. RIGHT NOW. This is YOUR LIFE you're fighting for - if you're going to beat this thing, start right now. Not later today. Not in a week. Right bloody now. As you go into chemo, your immune system is going to get brutalized as it is. End of lecture. :)

With immune system in mind - consult your doctor about taking L. Acidophilus and other good intestinal bacteria, as the drugs you'll be taking will wipe them all out and leave you vulnerable to stomach and digestive complaints. It's a little thing, but it can make eating (when you have to) a little easier to do. Learn about neutropenia (http://en.wikipedia.org/wiki/Neutropenia), and some things you can do to ease that discomfort.

You probably already know all this stuff; sorry... Your post plugged me into my "Defend my friends" mode.

You WILL survive this, and your life will be forever changed by it. I'm proud to know you, honored to call you a colleague, and humbled by your candor and honesty in facing this fight.

My best wishes and hopes are with you and your family.

TarJak
07-21-11, 08:38 AM
Sorry to hear about your news FF. Hope everything goes OK for you. Don't give up and fight hard mate.:salute:

Feuer Frei!
07-21-11, 10:12 AM
FF -

You WILL survive this.

Once in awhile, all of us are confronted with our own human frailties, directly or indirectly. Some people fold, others step up. You've already stepped up.
My best friend told me the other day something similar:
He said that we all face death at some stage in our lives, it is what decisions we make and what really is important to us. That we can make the right decisions. Some people face death without warning and they do not get a chance to make these decisions of what is most important to us in that time.
Others' like me have a choice and time to still make those decisions and prepare ourselves to fight it and beat it.
I can take heart from that, since i have some warning. Others are much less fortunate than me.


By the sound of it, you have three of the best reasons I can think of for a man to step up. You are fighting for your daughters, your family... and, when it's all said and done, you fight for yourself.
Absolutely! The 3 only reasons. You know, that is what will get me through this in the end. My 3 girls will give me the strength to fight and beat this. From them i will draw strength.
I will see my eldest, who is 8, this weekend to spend some time with her. I was originally thinking of not telling her that Dad is sick and what that sickness will eventually do my physical state. And mental state.
But, with the advice of my best friend and her mother i have decided to tell her a little about my condition.
She will ask questions, down the track of course, she is incredibly smart for her age and very perceptive.
I am currently teaching her German and oh boy does she pick that up well.
She astounded me the other week when, since the week before when i tought her some basic words, out of the blue, without warning she started to say these german words to me, with perfect pronunciation.
It surprised me and amazed me so. I was a little emotional and gave her praise.
So i will tell her about the future, short-term future, when Dad may not have any hair, why that is, and when Dad is too tired to run around with her or if Dad is not feeling well etc.
She will understand, not fully of course but i will not underestimate her powers of perception and understanding.
I think she is entitled to know.
My other 2 girls are too young to understand.
But they are all 3 in my heart and i will draw energy and strength from them, whilst i go through this. It will help me immensely, i have already conditioned myself to do this.
Anything that will help me.



Now the bad news. I know it's a habit, a stress-response, a nerve-soother, but you must QUIT SMOKING. RIGHT NOW. This is YOUR LIFE you're fighting for - if you're going to beat this thing, start right now. Not later today. Not in a week. Right bloody now. As you go into chemo, your immune system is going to get brutalized as it is. End of lecture. :)
This is another thing i have to work on, i know that. And i dare say that they will ask me to stop anyway, i have heard that they will not do chemo if you smoke.
But advice duly noted, i am already resigning myself to the fact that, certainly during the chemo stage, hopefully only for the 3 mths that i will not be smoking. Whilst my system is undergoing that hammering.
And probably 3 mths after that to recouperate. So, at least 6 mths of no smoking.
I am gearing up for that.


With immune system in mind - consult your doctor about taking L. Acidophilus and other good intestinal bacteria, as the drugs you'll be taking will wipe them all out and leave you vulnerable to stomach and digestive complaints. It's a little thing, but it can make eating (when you have to) a little easier to do. Learn about neutropenia (http://en.wikipedia.org/wiki/Neutropenia), and some things you can do to ease that discomfort.
Duly noted, and added to my list of questions i have already written down for the oncologist.
They have advised me that i will be consulted by a dietician, to help monitor my system and my weight during chemo.


You probably already know all this stuff; sorry... Your post plugged me into my "Defend my friends" mode.

You WILL survive this, and your life will be forever changed by it. I'm proud to know you, honored to call you a colleague, and humbled by your candor and honesty in facing this fight.

My best wishes and hopes are with you and your family.
Thank you, i appreciate your time and effort in posting this to me, i am greatful for your kind words and also your advice as well.

Each time i check this thread i am emotional and i get a warm feeling in my heart for all the kind comments and well wishes from everybody. The advice and prayers and positive thoughts are very much appreciated. It takes something like this to realise that you SUBSIM members are indeed a great bunch of people and you all seem incredibly genuine and caring people.
It is a shame that i will probably never ever meet any of you but by God, i feel that some of you i have known you for a long time and who knows, maybe someday there will be a SUBSIM meet in the land of kangaroos and wallabies and i get to meet you all and we will have some laughs and down some amber ale!
And i will be able to thank you all for your continued words of encouragement and greetings of hope and fighting spirit.

Schroeder
07-21-11, 12:28 PM
Ich kann nichts mehr hinzufügen, was nicht schon gesagt worden wäre. Ich wünsche dir viel Glück und ein schnelle Genesung.

RickC Sniper
07-21-11, 01:27 PM
F.F

It saddens me to hear this news but please be upbeat and know that it can have a great outcome.

My son had testicular cancer in his early 30's. Because it was noticed early his treatment was quite a bit simpler than yours. He lost the testicle and underwent radiation. That was over 5 years ago.

He smoked like a steam engine the whole time regardless of how much encouragement he had to quit. Regardless of the type of cancer smoking ALWAYS makes treatment less effective.

I am a religious man and I will pray for you, that you beat this beast and also pray that you have the will to stop smoking. (which might turn out to be the most difficult.)

Feuer Frei!
07-21-11, 07:01 PM
Ich kann nichts mehr hinzufügen, was nicht schon gesagt worden wäre. Ich wünsche dir viel Glück und ein schnelle Genesung.
Danke Schroeder, :salute:

F.F

It saddens me to hear this news but please be upbeat and know that it can have a great outcome.

My son had testicular cancer in his early 30's. Because it was noticed early his treatment was quite a bit simpler than yours. He lost the testicle and underwent radiation. That was over 5 years ago.

He smoked like a steam engine the whole time regardless of how much encouragement he had to quit. Regardless of the type of cancer smoking ALWAYS makes treatment less effective.

I am a religious man and I will pray for you, that you beat this beast and also pray that you have the will to stop smoking. (which might turn out to be the most difficult.)
Thank you RickC Sniper, i will give up smoking. Even if it's just during the chemo and the recoup time afterwards. I am going to need all my strength and every little bit of immunity that i can retain. Smoking will not help. I have acknowledged that and i would be a fool to smoke whilst this is going on. :salute:

Update:
Oncology rang me about half an hour ago, the appointment date is set: 27th of July (next Wednesday) 15:30.
Dam! Another 5 days. I am impatient. I want this to start sooner than later. This waiting around does not help the thought processes.

joea
07-22-11, 03:13 AM
Oh how the hell did I miss this? I am really sory to here that FF and I hope you get well. It's going to be a tough road but as far as we can over this virtual medium we will support you. :salute:

Feuer Frei!
07-22-11, 04:09 AM
Oh how the hell did I miss this? I am really sory to here that FF and I hope you get well. It's going to be a tough road but as far as we can over this virtual medium we will support you. :salute:
Thanks joea, i appreciate you showing your support.
I am going to know more, a lot more after next wednesday which is when i meet with the Oncologist.
I'll know how long the initial treatment will be for.
I just want to get this all started. I think after Wednesday i will feel a little better, knowing full well what is ahead of me. Rather than just what's on the patient fact sheet and second hand info.
Specific info, rather than general info, is what i am after.

Growler
07-22-11, 02:31 PM
Until Wednesday, my friend, sit back, take a deep breath, and relax as best you can.

There will be plenty to stress over in the coming weeks and months. For now, though, the best thing you can do for yourself is to let it go for a few days.

Rockstar
07-23-11, 09:50 AM
I was diagnosed with Melanoma several years back. I went in for my usual skin check, they hacked off a suspect skin sample and sent it in for biopsy. I get a call from my Dermatologist four days later on a Saturday of all days waking me at 7AM. Nothing to worry about she says but by the way she was saying it told a different story, horribly bedside manners.

Four days before I could get into surgery to have it completely removed and another 4 days for that biopsy report.

But that waiting. I was a nervous, ill tempered wreck the whole time.

It is no doubt difficult to get on with routine. But I second what Growler said, sit tight and take care of yourself first everything else is second. You can beat this.

Having been through this with someone I hope you don't mind the unsolicited intel.

Keep doing what you're doing research everything you can about this. It will help you to ask the doctors the right in-depth questions. It is important to write it all down take it with you.

When you start taking chemo try to have someone go with you to the doctors as well. There is a phenomena called 'chemo-brain'. Which MAY affect your speech and memory to a degree making it somewhat difficult and frustrating for you to ask questions and understand answers. Your doctor should be looking for this, ours did, an inability to put sentences together and or slurred speech is a sure give away to the care taker. Memory and speech will improve after treatment.

My wife was in a clinical trial so the type of chemo and dosage was not discussed. When asked how much the doctors only said she was getting both barrels we seemed to sense it was more than anyone had ever received before. Chemo takes on the fast growing cancer cells and unfortunately other fast growing cells like the ones in your nervous system too.

So be aware you may feel numbness in your extremities. This MAY lead to permanent damage in the long run. Like chemo brain it's something you need to keep your doctor and care taker informed of.

My wife was scheduled for a round of six chemo injections. She could only take four out of the six, she was ready to quit on the third but I pressed to do one more. She did suffer from nerve damage but has since recovered and leads a normal life.

Keep away from others with the flu or common colds. If you catch it they might suspend treatment until you get over it. Also the immune boosters my wife got to help build white cell count seemed to make her feel worse than the chemical therapy did.

This was about it as far as treatment went. The rest was up to her, diet, attitude, not letting it or anyone affect her life's routine (like swimming). We got very close during time though we weren't married yet. After treatment we sold everything, hopped on a sailboat and cruised for the last 6 or 7 years now. Life changed for us both. We don't work like other enduring that 9 to 5 rat race fighting to obtain the possessions we are told we must have. We don't even own a home just a 44 sailboat and two dogs. We found life is short as it is so we set out to enjoy it.

When you kick this cancers arse as I suspect and earnestly pray you will. Maybe I'll run into a boat named Feuer Frei! in the Caribbean. See you in Grenada! :arrgh!:

Feuer Frei!
07-23-11, 10:12 AM
It is no doubt difficult to get on with routine. But I second what Growler said, sit tight and take care of yourself first everything else is second.
Indeed. I have been teaching and prepping my mind to prioritize what's important. And what is not.
What is not important right now is that i resigned from my job, what is not important is that i will face financial difficulties. What is not important is all the material B.S. and what people will think of my appearance, whilst going through chemo.
What is important is to stay positive. What is important is to think of my 3 girls (daughters). What is important is to arm myself with whatever info i can obtain before the appointment on Wednesday with the Oncologist, and like you said, have questions at the ready.
Which i have already started. A list of questions has been begun, with more to be added, i am sure.

Having been through this with someone I hope you don't mind the unsolicited intel.
Not at all. Infact it is welcome.

When you start taking chemo try to have someone go with you to the doctors as well. There is a phenomena called 'chemo-brain'. Which MAY affect your speech and memory to a degree making it somewhat difficult and frustrating for you to ask questions and understand answers. Your doctor should be looking for this, ours did, an inability to put sentences together and or slurred speech is a sure give away to the care taker. Memory and speech will improve after treatment.
Oh boy. Something i wasn't aware of. Duly noted on my list of questions. Thanks.

So be aware you may feel numbness in your extremities. This MAY lead to permanent damage in the long run. Like chemo brain it's something you need to keep your doctor and care taker informed of.
Duly noted as well. And more to stress about.

My wife was scheduled for a round of six chemo injections. She could only take four out of the six, she was ready to quit on the third but I pressed to do one more. She did suffer from nerve damage but has since recovered and leads a normal life.
This relates to the numbness in your extremeties that you referred to? Or this is something entirely seperate?
Again, duly noted down.

I've had a look at the patient fact sheet from the hospital, which i linked to earlier on in this thread, and perused, in detail the side effects of chemo.
Now i assume that they are general side effects, since every person's system reacts differently to chemo.
May i ask politely if your Wife underwent any or most or all of those side effects whilst going through chemo?
The fact sheet is here:
https://www.eviq.org.au/LinkClick.aspx?fileticket=Tm6SYuw7dxs%3d&tabid=156

I'm curious as to wether the side effects described are a possibility, or if they all happen to every patient, or if the side effects may occur, if so, how many of them, how frequently, ie daily, weekly, hourly etc etc.
Thanks for keeping this thread alive, and helping me keep my hope intact and to stay on a positive path. :salute:

Rockstar
07-23-11, 11:12 AM
Sorry, She was beginning to feel slight discomfort in her left side after the first treatment but it soon subside after a day or two. As it went on though the discomfort increased and took longer and longer to go away.

She's a strong women both physically and mentally but it was taking a terrible toll on her. By the third round, she was ready to quit. I was the one who convinced her to take a fourth. It was that fourth which put the discomfort and damage over the top. According to her there was 'something really wrong' after that one.

Being in a clinical trial the doctors could not help with decisions or recommendations, they were simply observers. But when the day came to visit the doctors to tell them she couldn't endure anymore. Hearing her symptoms and complaint they did their best to tell us without interfering in the trial she was making the right decision. It was without a doubt, time to quit and helped us both immensely with knowing she made the right decision. But it took 6 to 8 months for the nerve damage to even start getting back to normal.

The severity of what she went through should only be looked upon as an individual case and not as general symptoms for everyone. It had much to do with the type cancer, chemotherapy, radiation and dosage. We met many other patients in support groups who had gone through or were going though treatments but each varied in symptoms.

I would be more than happy to go over the fact sheet. But could not open it.



.

Oberon
07-23-11, 11:34 AM
It's hard to know what to say in a situation like this, so I will just say that I'll be rooting for you and keep fighting, like Growler says, you've got the three best things to fight for. :salute:

Rockstar
07-23-11, 12:41 PM
Ok got it open so I'll go by the numbers here and try to recall.

Treatment: Cancer research is always advancing and improving upon treatment therapy. The only one I recognize is Pegfligrastim which if I remember right helps increase white blood cell count during chemotherapy.

Allergic reaction: Though the chemicals used were different (I think) no allergic reactions to it.

Flu-like Symptoms: Yes, felt like crap.

Nausea and Vomiting: Yes, but it wasn't severe and usually happened after the Pegfilgrastim shot. Was given prescription anti-nausea meds to help.

Pain or swelling at injection site: No. Pegfilgrastim was injected in the arm by me at home. However, chemotherapy was administered at the hospital by IV through a vein in either left or right hand. Only problem there sometimes was difficulty in finding a vein they could use.

Red/Orange Coloured Urine: Yes, weird but no ill effects.

Bone pain: Yes and I think it came after the Pegfligrastim shot.

Changes in Sense of Smell or Taste: Yes, no ill effects with smell. Do not however eat your favorite food during chemotherapy. It is known some patients over the course of therapy will develope a strong dislike for it later. Hers was a toasted bagel with everything and cream cheese which she ate while the IV was in her. Now she can't stand the thought of eating one. Oh one more thing, after her first treatment she began to smell different the best I describe would be metallic. She also said most of what she ate tasted somewhat tinny or metallic too.

Low Red Blood Cell Count: Not aware of it. We were told the concern was white blood cell count.

Increased risk of infection: Yes your immune system will be affected by treatment. Big concern would be more time tacked on to treatment as they will most likely suspend it until infection is cleared up. But it didn't stop her from swimming or going to public places. In fact I was the only one who caught a cold, she never did.

Low Platelets and Increased Risk of Bleeding: Yes on the low platelets; No to any bleeding.

Sore Mouth: No

Constipation: Yes, over the counter meds suggested.

Common Side Effects associated with taking Steroid Medications: Hmm I don't recall her taking Steroid Meds. Even if she did I don't recall any of these symptoms, she slept pretty good. Appetite decreased though and I had to coax her to eat sometimes. I found many patients suffer from loss of appetite because they become depressed and give up. So DO NOT GIVE UP, EAT the good stuff and then EAT more of it. Stay away from processed sugars.

Numbness and Tingling in Fingers and Toes: If this refers to what I think it does. I learned chemotherapy kills cancer cells but also goes after certain other good cells too, including those part of the nervous system. It is something you should expect even after the first treatment. I think though it really depends on the type and dosage of chemotherapy though. Some we knew never had this problem.

Hair Loss: Oh Yes. we were at a cabin and when we woke up in the morning a lot of hair was on the pillow. It was a traumatic sight for her and really drove home the reality of the situation. Still though she recovered from it when the bell rang and came out fighting. Wasn't about to wake up another morning to see this happen again. So she took control and off she went to the salon with her sister and shaved her head bald!

One more thing your scalp may become very sensitive, making it hard to sleep. Changed pillows and pillow cases several times which helped a bit. Even went so far as making a soft flannel night cap

Feeling Tired: Yes. see Flu-like Symptoms

Changes in the way your heart works: So far so good she always been athletic and I think it paid off here.

Menopausal Symptoms: Nothing you have to worry about here.

Chemo Brain: Not seen on the fact sheet but I mentioned it before. A doctor though aware of it may tell you there is absolutely no scientific evidence to suggest chemotherpy can affect the brain in this way. Speak with other cancer patients and you will hear a different story. It happens so be aware of it.

Depression: Another not seen on the fact sheet. Though it doesn't happen to everyone it's something that everyone needs to be on the look out for, including you. I wish I could remember where I saw the statistics but cancer is not the number one problem for cancer patients, depression is.

I hope this help you know what you're up against. Not to add stress or worry you but to equip you to conquer.

I will always pray for you.

danasan
07-23-11, 01:08 PM
Hair Loss:

I remember that very well. When it started, my girlfriend asked me to shave her head. I did and as a sign of taking part, I shaved mine as well.

FF, I can assure you, her hair came back much stronger, thicker and more beautiful than before. And it did not take very long. That is truth: The chemo's aftermath causes a refreshing of the cells.

Mine didn't come back better than before...

danny60
07-23-11, 06:21 PM
Damn...
I am truly sorry for you, even though I've been through a similar thing it didn't get as far as a ultrasound. I wish you the very best of luck.
A friend of mine went through Kemo (spelt that wrong) for lukimiea (also spelt wrong), and the one thing, that you much do above all else is keep your spirits up. I can get hard at times, but you WILL pull through,
I salute you. :salute:

Feuer Frei!
07-23-11, 07:20 PM
It's hard to know what to say in a situation like this, so I will just say that I'll be rooting for you and keep fighting, like Growler says, you've got the three best things to fight for. :salute:
Thanks Oberon, thank you for your support. It is greatly appreciated. :salute:

Damn...
I am truly sorry for you, even though I've been through a similar thing it didn't get as far as a ultrasound. I wish you the very best of luck.
I salute you. :salute:
Thank you danny60. Thanks for your kind words of support :salute:

@Rockstar:
Thanks for taking the time to analyse and compare the side effects of the patient sheet.
It just strengthens my thought that each and every case is different, and i guess until i actually go through this myself, with the first cycle of chemo behind me, then will i truly know what it will feel like. And how i will need to best manage it.
Like people have said here before, no point in worrying about things i don't know (yet), i will welcome Wednesday's appointment with the Oncologist with open arms, it is another step towards beating this, the side effects will come, but i will also know that the drugs are doing their bit.
I am going out with my eldest Daughter this morning, taking her out for lunch, and i will let her know about my predicament and what will likely follow.
It means a lot to me, people replying here in this thread, i really do mean that.
I take strength from that, and it makes my days of not knowing and the trepidations of what is possibly to come a whole lot easier.
I am in your debt. :salute:

Feuer Frei!
07-27-11, 04:41 AM
Update:
After Oncologist appointment.
Outcome: None the wiser.

Ok, i am even more perplexed and confused than what i was before the Oncologist's.
In short, CT scans tomorrow to see if lymph nodes have increased in size since last observation.
Now, the last few consultations, 1 before the operation and the follow-up after operation, it was indicated to me that no immediate visible signs of invasion have occurred of the cancer.
Great, i thought. Good news. Now, after today's meeting, this clown tells me it has definately spread, to what extent they are not sure, hence the CT scan referral. This will be done tomorrow, and the follow up meeting on the 3rd with Oncology to determine what steps are to be taken next. Hell, what made this crap even more confusing is that apparently if the lymph nodes have enlarged then that is not necessarily a bad sign. And the CT scans are also ordered to see if any invasion has occured of kidneys, lungs etc etc.
Last scans done indicated all vital organs are good.
That was a month ago.
The other thing that really confused the hell out of me is that i posed the question of my symptoms that i've had for the last 10 to 12 mths, which include weight loss, reflux, sore lower back which is a symptom of testicular cancer, and a few others, and if they all tied in with this cancer.
Reply was: No, almost certainly not!
Whaaaat? I have been told in the last 2 meetings that yes, cancer causes these symptoms, and that once i'm through this i will see notable improvement.
Now today, we have contradicted that and i'm back to square one again.
WTF? Ok so my weight loss over the last 12 mths has now nothing at all to do with the cancer?
I mean, make up your f'in minds, for God's sake.
I know for a fact that cancer causes weight loss.
So, in short, i'm none the wiser after today, and the most crucial and wonderous thing i found out today is that in a week, when we have the follow-up meeting then we will decide wether i need chemo or not! If i need chemo, or not! Yep, you heard that right!
I was expecting to go into today's meeting, expecting dates and times and doses of chemo treatment.
Not a complete flip and being told IF i need chemo in a week's time, which are reliant on these CT scans.
I mean, don't get me wrong, that sounds like good news, you bet. Not needing chemo, but on the other hand, after some of the backflips today, i'm not sure what to think anymore.
Anyways, just keeping those members in the loop, like i said i would, plus it gives me a chance to write about it and bounce these things off other people.
Thanks guys.

Reece
07-27-11, 05:02 AM
I'd be thinking of another doctor or specialist, a second opinion isn't unwise!:hmmm:

danasan
07-27-11, 05:53 AM
I'd be thinking of another doctor or specialist, a second opinion isn't unwise!:hmmm:

+1

but not to confuse you or taking anything in doubt. As I stated before, these doctors are often short of time. We should not blame them for that fact. Ask a doctor you trust on if he/she has some time for you.

As far as I know, chemo is not always used. The therapy is as individual as the patient is and it is often a mixture of operation / rays / hormone / chemo. Nowadays, they try their best to cause the lowest "damage" to your body and your immune system, because it is important to keep that.

But: Please ask a doctor, these information is from my girlfriend's case!

Feuer Frei!
07-27-11, 06:05 AM
Yea, a second opinion couldn't hurt.
I might look into that.
I did admit that a lot of the other questions i had in store weren't really appropriate at this time as they were to do with chemo.
And no point in going down that road, if chemo isn't going to be used.
They may try radiation treatment first. But, who knows. I am not going to second-guess and predict the future, no point.
I've been giving my mind a break from everything over the last 3 to 4 days.
It's just a waiting game right now. Another waiting game. As if i haven't had a few of those lately.
I did have a nurse in Oncology dispel a lot of my trepidations and fears about the side effects of chemo though.
She mentioned a guy who is 30 and has testicular cancer and he is in his 3rd treatment now. With no hair loss, gaining a few kilos and doing really well apparently.
Like i said in a previous post here, the side effects described on web sites and pamphlets and written material are general only. Not specific to an individual's case.
Of course i realise that chemo plays different games with different people.
Bring on next Wednesday, for round 2!
And treatment path.

Jimbuna
07-27-11, 06:22 AM
One small buit important point....STAY POSITIVE...a lot easier said than done I know but it can be a great benefit for the mindset and help act as a calming measure/strategy.

Feuer Frei!
07-27-11, 06:35 AM
One small buit important point....STAY POSITIVE...a lot easier said than done I know but it can be a great benefit for the mindset and help act as a calming measure/strategy.
Absolutely. I don't under-estimate the importance of that.
I am doing my best at the moment, keep on doing my daily routines, go about my business as per usual and prioritising what is important and what is not right now.

Castout
07-27-11, 06:39 AM
Don't get upset and stressed out. If you're holding a grudge it's tiring and bad for the immune system making it weaker. In the long run it could affect your organs such as heart and kidneys as well.

So do stay positive. Time has come to challenge you. You need to step up to the plate and be brave. We all really hope you to win.

Penguin
07-27-11, 06:51 AM
Yea, a second opinion couldn't hurt.
I might look into that.

I second that! You really should do this! My mom was diagnosed with cancer when a specialist checked her lymph knots. She got a second opinion, from a doc with less reputation but apparently more skills. Luckily it was something else.
What I am saying is that the human body is unbelievable complex and sometimes people make mistakes. But this is your body and your life, better take no chances.


I did have a nurse in Oncology dispel a lot of my trepidations and fears about the side effects of chemo though.
She mentioned a guy who is 30 and has testicular cancer and he is in his 3rd treatment now. With no hair loss, gaining a few kilos and doing really well apparently.

I have some friends who work as nurses. I give a lot on their medical opinions, as they are the people who see patients the most, much longer than docs. Always good to hear experiences from people who fight on the front lines.


Bring on next Wednesday, for round 2!
And treatment path.

Ich drücke dir weiter die Daumen und hoffe dass du am Mittwoch mehr Klarheit bekommst! Versuche den Kopf etwas freizuhalten, wie du es die letzten Tage gemacht hast. Du kannst im Moment nur abwarten, lass dich nicht davon verrückt machen. Und wie Jim und Castout sagen: bleib postitiv! Sehe das bitte nicht als leere Phrasen, sondern als ehrliche Wünsche die vom Herzen kommen - auch wenn wir uns leider nicht persönlich kennen.
Alles Gute, du wirst den verdammten Krebs versenken! :salute:

Lord Justice
07-27-11, 08:55 AM
I post here today but not without difficulty. I am particularly saddened to learn of your health. My return here bears some concern, but not to be regretted from any views but those of the heart. Pete this is alarming, I am pleased to find that you yet keep your ground. I am prompted to add a hundred things which I dare not, for fear of common flatteries given circumstance, but I do desert a moment to tell you that I am wholly yours if need be, (PM any time). I post with more sincerity and less reserve, Let all good things favour to overcome your news and serve to lessen your torment. :salute:

Feuer Frei!
07-27-11, 09:24 AM
I second that! You really should do this! My mom was diagnosed with cancer when a specialist checked her lymph knots. She got a second opinion, from a doc with less reputation but apparently more skills. Luckily it was something else.
Hmm, in regards to a second opinion, where would i get that? What i mean is, at the hospital? I would think so, since the specialists are there. Not a GP.
And how would the current Oncologist feel if i commanded a second opinion? Nose out of joint, so to speak? I don't want to tread on this guy's toes, in case he gets the poos and gives me even less service!



I have some friends who work as nurses. I give a lot on their medical opinions, as they are the people who see patients the most, much longer than docs. Always good to hear experiences from people who fight on the front lines.
Let me tell you, the nurse that took my blodd pressure and a quick check-up before the oncologist meeting was something else! Amazing perky and personable personality! She was British, having been in Oz for about 18 mths. But what a delight she was. Very pleasant and likeable.

Ich drücke dir weiter die Daumen und hoffe dass du am Mittwoch mehr Klarheit bekommst! Versuche den Kopf etwas freizuhalten, wie du es die letzten Tage gemacht hast. Du kannst im Moment nur abwarten, lass dich nicht davon verrückt machen. Und wie Jim und Castout sagen: bleib postitiv! Sehe das bitte nicht als leere Phrasen, sondern als ehrliche Wünsche die vom Herzen kommen - auch wenn wir uns leider nicht persönlich kennen.
Alles Gute, du wirst den verdammten Krebs versenken! :salute:
Also Ich muß sagen, von dem Tiefsten Teil des Herzen danke Ich Dir. Sehr nett von Ihnen, Sich um mich zu kümmern!


I post here today but not without difficulty. I am particularly saddened to learn of your health. My return here bears some concern, but not to be regretted from any views but those of the heart. Pete this is alarming, I am pleased to find that you yet keep your ground. I am prompted to add a hundred things which I dare not, for fear of common flatteries given circumstance, but I do desert a moment to tell you that I am wholly yours if need be, (PM any time). I post with more sincerity and less reserve, Let all good things favour to overcome your news and serve to lessen your torment. :salute:
Ah Steven, it is a delight to see you here.
I thank you from the bottom of my so far strong and positive heart for your words of encouragement and will take great strength also from your offer of support. For that is what makes us stronger and earns us the badges to wage war against this black foe.
I have to admit to you that the members here have been pillars of rock in relation to showing their support and indeed you come at a most opportune time, for it is a time of need. But it is also a time of giving, with me keeping this thread alive, like my positive outlook, shall i perhaps enlighten and educate others to be more watchful and perhaps learn from this. What ever the outcome may be in the end.
I wish you well, and thank you again for your offer of support.
May the light shine on!

Tchocky
07-27-11, 09:48 AM
How did I miss this thread?

Dude, keep your chin up, eat right, and there's no reason you can't beat this!
Everyone here's rooting for you :up:

Lord Justice
07-27-11, 10:58 AM
Ah Steven, it is a delight to see you here.
I thank you from the bottom of my so far strong and positive heart for your words of encouragement and will take great strength also from your offer of support. For that is what makes us stronger and earns us the badges to wage war against this black foe.
I have to admit to you that the members here have been pillars of rock in relation to showing their support and indeed you come at a most opportune time, for it is a time of need. But it is also a time of giving, with me keeping this thread alive, like my positive outlook, shall i perhaps enlighten and educate others to be more watchful and perhaps learn from this. What ever the outcome may be in the end.
I wish you well, and thank you again for your offer of support.
May the light shine on!I read your affectionate response, which revives me so, your want of cheerfulness is acceptable of any token of friendship you can give me. May good angels guard and preserve you. :salute:

Rockstar
07-27-11, 04:22 PM
Something you might ask about is a CA-125 count (Cancer Antigen-125)

Everyone here has in their bodies a 'normal level' of cancer antigens floating around on the look out for cancer cells of which, believe it or not, everyone has in their bodies too. When these mutating cells are found the cancer antigens attack and destroy them. Sometimes however these cancer cells grow too fast and the body will produce antigens in even greater numbers to do combat.

When she had blood work done the CA-125 count was 32. A relatively low number for some cancers, but very high for the kind she had.

It might be something to ask about next meet to see what exactly they are looking at. Like the CA-125 count, swollen sentinal nodes indicate potential problems but not always a certain problem with cancer. Combined information helps.

Love ya man. live strong, stay strong.




.

sidslotm
07-30-11, 04:13 PM
Today has been the very worst part of my life, at 09:30 this morning, my time, i had a follow-up consultation at the hospital, after the removal of a Testicular tumour, that it is malignant, ie cancer, and that i will need chemo therapy.


So how you now?

Diet seems to play a serious part in our lives, some one shared this with me last week so I thought I'd share it with you.

http://www.hacres.com/home

Feuer Frei!
07-30-11, 06:39 PM
So how you now?
Well, i'm pretty positive about the whole thing, i have the deciding follow-up appointment next Wednesday, so that is when i will find out what treatment i need.
Last week's appointment was a referral for more CT scans to see if the lymph glands had enlarged since the last time, however the Doc told me that if they had that that may not necessarily be bad. I was confused by that.
In fact, i was confused by a lot of things that day, as i pointed out in a previous post.
Will keep updating, as news develop.

Diet seems to play a serious part in our lives, some one shared this with me last week so I thought I'd share it with you.

http://www.hacres.com/home
Thanks for the link :salute:
Will read through that shortly.

Jimbuna
07-30-11, 08:03 PM
Fingers and everything else crossed :sunny:

CaptainMattJ.
07-31-11, 02:49 PM
this is a very wierd thing to ask, but how big was the lump?

I have something similiar, except its a tiny bead (slightly hard) that just floats around in there. I dont think much of it, because it hasnt gotten bigger, and based on my knowledge, cancer needs blood vessels to pump directly into it to feed itself, and since its just floating around i didnt think it was attached to vessels.

Herr-Berbunch
07-31-11, 03:17 PM
this is a very wierd thing to ask, but how big was the lump?

I have something similiar, except its a tiny bead (slightly hard) that just floats around in there. I dont think much of it, because it hasnt gotten bigger, and based on my knowledge, cancer needs blood vessels to pump directly into it to feed itself, and since its just floating around i didnt think it was attached to vessels.

If you have any doubt whatsoever - go to the Docs! Soonest! Better to have your mind at rest than ANY other option.

Reece
07-31-11, 05:40 PM
Only a couple of days away, I wish you the best!:yep:

Jimbuna
07-31-11, 06:17 PM
this is a very wierd thing to ask, but how big was the lump?

I have something similiar, except its a tiny bead (slightly hard) that just floats around in there. I dont think much of it, because it hasnt gotten bigger, and based on my knowledge, cancer needs blood vessels to pump directly into it to feed itself, and since its just floating around i didnt think it was attached to vessels.

GET 'EXPERT OPINION' simple as.

Growler
08-01-11, 09:29 AM
this is a very wierd thing to ask, but how big was the lump?

I have something similiar, except its a tiny bead (slightly hard) that just floats around in there. I dont think much of it, because it hasnt gotten bigger, and based on my knowledge, cancer needs blood vessels to pump directly into it to feed itself, and since its just floating around i didnt think it was attached to vessels.

Matt, from previous experience, that sounds like an infection and not cancer, but you absolutely MUST see your GP soonest for a proper course of antibiotics to treat it. (I hate antibiotics, but I hate being unwell more.) Over time, that untreated infection can really mess a guy up, and some Docs believe that a tendency for infection there is a contributor to cancer later on.

Feuer Frei!
08-03-11, 02:43 AM
Update. 03/08/11.

I went into today's consultation with some trepidation, as you can imagine.
Thoughts of : "Has this spread to my vital organs"? "Has this spread to my stomach"?
The answers were surprising and a rather big relief.
Nothing of the sort.
No signs of spreading, kidneys, lungs and liver all in good repair.
The Doctor said that this type of cancer does not spread to the stomach, or the liver or kidneys.
The way it travels up is through your lymph nodes. Then it can invade your Lungs etc.
Now, the lymph nodes was the other thing i thought of. From the last scans done a month ago, no visible signs if enlargement. What they look for is if the lymph nodes are 1 cm or larger, that is abnormal and a sign of concern. However in my case, no enlargement, which is bloody fantastic!
The road i travel now, from today is the following:
On the 8th i have an Education session, on the 10th a Doctor's appointment at 14:15 and then the same day at 15:00 1, yes, 1 cycle of Chemo.
The Doctor said that in my situation, with this type of cancer and where i'm at currently, i had 2 options:
1) no treatment and continual monitoring every 3 to 4 weeks then less to monitor any concerns with the lymph nodes enlarging.
Or, 2) 1 Cycle of chemo with 1 drug.
I chose the latter.
In the hope of killing this sucker now, before it has a chance to spread or do further damage.
The only really worrying thing that i found from today's hospital trip is that i have lost 2kg's in 7 days!!
Bloody hell, i'm wasting away here.
I asked Doc and he said it can be because of the cancer cells present in your system.
He advised that i have this cycle of chemo, wait 3 to 4 weeks and see if there are any signs of improvement.
If not, see GP and go from there.
We will see.
But i hope this is going to improve, with the chemo, because i've got no idea how to stop this wasting away.
Overall, i'm still alive and in good fighting spirits.
I forgot to mention, the procedure for the next 5 to 10 years is to keep on being monitored, via ct scans, xrays and tumor markers.
Actually the other good news is that the blood tests done last week showed that the tumor markers haven't increased from last time.
Tumor markers are a sign that the cancer has increased, or stabilized. Also a good measuring stick for chemo treatment, to see if cancer cells are responding to the treatment.
Anyways, once again Gentlemen, thank you for your ongoing support and thoughts and well-wishes!
Very much appreciated. :salute:

Lord Justice
08-03-11, 03:22 AM
Glad to hear the good angels were with you Pete, goodluck with the rest. Now your on next watch you do no get away from us easily. :O: :salute::yeah:

joea
08-03-11, 03:37 AM
Likewise nice to here the optimistic prognosis. :yeah:

Flaxpants
08-03-11, 03:40 AM
Good news Pete, for sure. I can only imagine your fears going in there for the appointment. Still, the relief must have been good.

You made the right decision with the Chemo, I would have done the same thing, better deal with it now and with any luck be able to put it all behind you later.

You may have lost a fair share of that weight due to stress as well as any cancer you may have. How are your eating habits?

Magic1111
08-03-11, 03:44 AM
Update. 03/08/11.
Anyways, once again Gentlemen, thank you for your ongoing support and thoughts and well-wishes!
Very much appreciated. :salute:

Hi my Friend !

That sounds very good, I´m happy for you !!! :yeah:

Best regards,
Magic:salute:

Castout
08-03-11, 04:07 AM
All the best from here. Take care. Keep well. Might want to try to enjoy the fight. I'd believe being positive would help to actually fight these cells.

Herr-Berbunch
08-03-11, 04:09 AM
That would've been my choice too. Glad it's not been bad (or worse?) news. :yeah:

Feuer Frei!
08-03-11, 06:00 AM
Now your on next watch you do no get away from us easily. :O: :salute::yeah:
But the Doctor didn't warn me about this! Why is that? I demand a second Medical Opinion :O:



You may have lost a fair share of that weight due to stress as well as any cancer you may have. How are your eating habits?
You know, i think that certainly has something to do with it. The stress and worry.
My eating habits to be absolutely honest haven't been all that great, due to the crap i've been going through.
So from that you could probably attribute a few kilos lost.
It's just the overall weight loss over an extended period of time, that's the concern.
But, with a bit of luck and a Dietician's input and help i can over the next 3 months regain my physical state of well-being.

Jimbuna
08-03-11, 06:37 AM
Onward and upward matey :rock:

Paco
08-03-11, 06:47 AM
Hallo,

aus beruflichen Gründen war ich in letzter Zeit selten im Forum und bin erst eben auf diesen Thread aufmerksam geworden.

Hm, ich bin ziemlich sprachlos was Dir gerade widerfährt und kann Dir auch nur schwer mitteilen wie sehr es mich mitnimmt es zu lesen.

Vieles ist schon geschrieben worden und ich mags nicht wiederholen, nur eines:

Halt die Ohren steiff und "Niemals aufgeben".

Ich denk an Dich und drück Dir die Daumen auch wenn wir uns nur flüchtig hier begegnen,
Paco.

Feuer Frei!
08-03-11, 07:15 AM
Hallo,

aus beruflichen Gründen war ich in letzter Zeit selten im Forum und bin erst eben auf diesen Thread aufmerksam geworden.

Hm, ich bin ziemlich sprachlos was Dir gerade widerfährt und kann Dir auch nur schwer mitteilen wie sehr es mich mitnimmt es zu lesen.

Vieles ist schon geschrieben worden und ich mags nicht wiederholen, nur eines:

Halt die Ohren steiff und "Niemals aufgeben".

Ich denk an Dich und drück Dir die Daumen auch wenn wir uns nur flüchtig hier begegnen,
Paco.
Vielen Dank mein Freund! Sehr nett von Ihnen :salute:
Ich muß schon sagen das Ich mich Hundert Prozent besser fühle, Erstens, wegs der Nachricht vom Doktor heute und Zweitens wegs den Super Netten Leuten hier auf SUBSIM!
Ohne dieser Unterstützung von den Mitgliedern wäre das viel härter zum Verdauen gewesen.
Viele Grüße aus Australien,
:salute:

Growler
08-03-11, 07:26 AM
Update. 03/08/11.

...:salute:

Hot damn, that's pretty decent news, my friend!

This is totally beatable, and it sounds to me like you're in the right frame of mind to kick its arse once and for all.

Don't worry so much about the weight loss; that's far more easily fixed, as long as you're staying healthy (and improving your diet LOL).

Keep us posted!

CCIP
08-03-11, 08:10 AM
Keep up the fight! Will keep hoping for more good news for you :salute:

Magic1111
08-03-11, 08:42 AM
Viele Grüße aus Australien,
:salute:

Hi !

Australien ? :o

Wohnst Du in "Down under" oder machst Du dort gerade Urlaub ? :hmmm:

Viele Grüße,
Thomas:salute:

Feuer Frei!
08-03-11, 09:02 AM
Hi !

Australien ? :o

Wohnst Du in "Down under" oder machst Du dort gerade Urlaub ? :hmmm:

Viele Grüße,
Thomas:salute:
Ich wohne in Australien. Bin mit den Eltern ausgewandert in 1981.
Eltern haben genug gehabt von dem Geschäft, Politik und dem Wetter!
Haben schon vorher Deutsche Freunde hier gehabt.
Wir sprechen besser English weil sonst gibt's Zunder! :O:
many happy returns to you Thomas,
regards
P.

Magic1111
08-03-11, 09:05 AM
Ich wohne in Australien. Bin mit den Eltern ausgewandert in 1981.
Eltern haben genug gehabt von dem Geschäft, Politik und dem Wetter!
Haben schon vorher Deutsche Freunde hier gehabt.
Wir sprechen besser English weil sonst gibt's Zunder! :O:
many happy returns to you Thomas,
regards
P.

Hi !

Aaaah, sehr interessant ! Hatte mich nämlich schon ein bisschen gewundert, dass Du SO GUTES englisch sprichst/schreibst. Nun ist es ja klar ! :DL

Na dann viele Grüße nach "DownUnder" in den "Winter":haha: !

Viele Grüße und bis denne,

T.:salute:

Rockstar
08-03-11, 09:20 AM
This is truly great news! I am so glad the doctors have a grasp on the situation and gave you good solid answers. You just keep on getting better man. Hope this whole medical ordeal comes to a swift conclusion so you can leave it behind you and move forward and lead a very long and fruitful life. :salute::salute::salute::salute:

Rebel
08-03-11, 09:23 AM
i my self live this.=:damn::timeout::wah::ping:.what you write as i have read . you are in the light of knowing.

Feuer Frei!
08-03-11, 09:34 AM
Thanks for the replies Gentlemen :salute:
This sort of 'news' gives a whole new meaning to the saying: Life is Beautiful".
Although not out of the woods yet, not by a long shot, it is certainly mighty positive and cheerful news.
Will update thread as news comes to hand.

Schroeder
08-03-11, 11:01 AM
Wut? Good news on the web? There must be some error!:stare:

:O:

Great to hear that news. Think of your drug as a torpedo that you fire at your enemy. Sink 'em ALL!:yeah:

Flaxpants
08-03-11, 11:42 PM
You know, i think that certainly has something to do with it. The stress and worry.
My eating habits to be absolutely honest haven't been all that great, due to the crap i've been going through.
So from that you could probably attribute a few kilos lost.
It's just the overall weight loss over an extended period of time, that's the concern.
But, with a bit of luck and a Dietician's input and help i can over the next 3 months regain my physical state of well-being.

I think you have to put down a fair amount of lost weight to stress- which in itself can be a killer. Hopefully now you've had some positive news your stress levels will go down somewhat and your eating will improve.

Like has been mentioned, I wouldn't worry about the weight loss too much right now, easily fixed later- A crate of Newcastle Brown Ale for example, is good for weight gain- about 3 kilos per crate (Jim has the full details). :D

Feuer Frei!
08-04-11, 12:40 AM
Wut? Good news on the web? There must be some error!:stare:

:O:

Great to hear that news. Think of your drug as a torpedo that you fire at your enemy. Sink 'em ALL!:yeah:
Cheers mate. No error, good news indeed, no need to re-adjust your reading glasses! :O:
And the chemo torpedo will not be a dud!

I think you have to put down a fair amount of lost weight to stress- which in itself can be a killer. Hopefully now you've had some positive news your stress levels will go down somewhat and your eating will improve.

Like has been mentioned, I wouldn't worry about the weight loss too much right now, easily fixed later- A crate of Newcastle Brown Ale for example, is good for weight gain- about 3 kilos per crate (Jim has the full details). :D
Absolutely. And I better not mention the Brown Ale to the Dietician then :O:. Although i'm sure if Jim was a Dietician he would recommend that every week, without fail. :haha:

Jimbuna
08-04-11, 06:26 AM
BroonDog will help with weight gain and alleviating the stress :yep:

http://img682.imageshack.us/img682/2884/drunkcob.gif

Feuer Frei!
08-10-11, 07:03 AM
Update:
It's done!
At 15:00 today I received 1 cycle of Treatment, with the drug Carboplatin.
Length of time to administer: approx. 90 minutes.
No visible immediate side effects. Immediate side effects of rashes, redness, soreness or pain around the injection site can be experienced.
The cycle started with the dose of salt water, then a pre prep rinse, then the drug Carboplatin, mixed with 5% Sucrose, then to finsih, a 3.50 min. flush.
I have been home now for approx. 4 hours and no visible signs.
The nurses have informed me that it is very unlikely that I will exhibit any dramatic levels of side effects associated with this particular cycle, due to it only being 1 drug, not a mix of different drugs, and the administering of only 1 cycle.
The down time of this treatment is between day 7 and day 10.
I have my medication to take over the next 2 days, and have been given anti-nausea meds to take if i feel sick.
Hair loss it seems, is more the thinning of hair, or so it is described on the fact sheet, not a full description with the heading: hair loss.
So, for now, we will see.
I am happy that it is over, the adminstering side of things anyway.
Now, the next path we take is: for the next 3 weeks, every week, blood tests, and in 3 weeks a follow-up with the Oncologist.
Other than that, I am in good spirits, welcoming the drug with open arms, to do its thing.
Fingers crossed for the next 5 to 10 years.

Growler
08-10-11, 07:15 AM
Glad to hear it; luck be wth you! On with the rest of your life!:DL

joea
08-10-11, 08:07 AM
Keep up your spirits buddy! Keep posting those wierd articles too. :up:

Jimbuna
08-10-11, 08:46 AM
The very best of luck young man :sunny:

danasan
08-10-11, 08:49 AM
I wish you all the best, Pete!

Herr-Berbunch
08-10-11, 09:11 AM
All sounding as good as it could be. :yeah:

Keep pushing the early warning message to help others.

Feuer Frei!
08-10-11, 09:23 AM
Keep up your spirits buddy! Keep posting those wierd articles too. :up:
Weird? Who says they're weird? :O::D
Thanks for the well wishes.
And thanks to all again for your kindness and motivational messages.
You're all a wonderful bunch of guys! :salute:

Penguin
08-10-11, 09:46 AM
So do I get it right that the next follow-up will show you if the medical treatment was successful? And how's your appetite doing?
Don't want to sound too nosey, but I care, mate!

I'll keep my fingers crossed - und meine Daumen weiterhin gedrückt ;)

Rockstar
08-10-11, 10:22 AM
You live a good and long life now and don't miss out on the little things either. Do something you wouldn't have ever thought to do before.

We seem to get locked into that daily grind and forget how fleeting life can be and never take time to really live it. By the time we retire and finish accumulating things for our shelves and closets. We find we're too old to have a real adventure and find ourselves finishing out our life sitting around watching reality TV.

Maybe I'll see ya in St. Maarten one day. Nothing like sitting at the end of the runway getting blown down the beach into the water by the jet wash of a 747. I know sounds stupid, but I've done it. :doh: :D

Feuer Frei!
08-10-11, 10:40 AM
So do I get it right that the next follow-up will show you if the medical treatment was successful?
Unfortunately, no. The 3 week follow-up will be to collate the 3 week blood tests, which I have to do from next week until follow-up.
The remission stage will not be attainable until 5 to 10 years from now. Meaning monitoring for the next 5 to 10 years of lymph nodes (left-hand side for that is which the tumour was found), blood tests and ct scans. Indeed a small price to pay, for it could have been a lot worse. And how's your appetite doing?Appetite is so-so. I do eat, I try to get in breakfast, but get lazy a lot of the times. Lunch may be a left-over from dinner, or sandwhiches, then dinner a cook-off (with myself :haha:), meat dish with either pasta and some canned veg, followed up with a chocolate mud cake, if I have any in the Fridge :up:

Don't want to sound too nosey, but I care, mate!Not at all, my Friend, you are not nosey at all. I appreciate the questions. As you pointed out, it is concern, and that you care. I'm feeling very appreciative of that fact, Danke, Mann!:salute:

I'll keep my fingers crossed - und meine Daumen weiterhin gedrückt ;)Ich auch, jetzt geht's los mit dem Leben. Richtig leben.

You live a good and long life now and don't miss out on the little things either. Do something you wouldn't have ever thought to do before.

We seem to get locked into that daily grind and forget how fleeting life can be and never take time to really live it. By the time we retire and finish accumulating things for our shelves and closets. We find we're too old to have a real adventure and find ourselves finishing out our life sitting around watching reality TV.

Maybe I'll see ya in St. Maarten one day. :salute:
I hear ya, Rockstar. Taking things for granted. It is just a shame that it takes tragedy and loss, or tragic, reversable (in my case) news to make one realise that we are not invincible and that we cannot be ignorant to life's invaders of the body.
The time when tragedy calls upon us, or the time when bad news arises, sorts out the fighters from the deserters.
Those of us who fight and are strong of mind, body and spirit will beat the invaders and live to hopefully change their ways so that they may show others that they have learned from this and also hopefully educate and assist in helping others who are experiencing the same plight. And hopefully to aid that person in winning the battle, and ultimately the war.
Analogies everywhere. But you get my drift.
Many thanks, I cannot say enough that you have all been wonderful in your show of support and I am indebted to you all for that. It pains me that I may never meet any of you, for I am a man who is a People's person, ie face to face.
:salute:

AJ94CAP
08-10-11, 10:41 AM
Very good news indeed FF. Cancer is a very ugly thing. My grandmother passed from it just a month or so before I was born. One of my friend's mother had a 15 lb. tumor in her abdomin and they got it out and the cancer came back twice more but finally it has been gone for years.

Feuer Frei!
08-10-11, 10:47 AM
Very good news indeed FF. Cancer is a very ugly thing. My grandmother passed from it just a month or so before I was born. One of my friend's mother had a 15 lb. tumor in her abdomin and they got it out and the cancer came back twice more but finally it has been gone for years.
Thanks for the well-wishes. :salute:
And great news for your friend's Mother.
They key to this all is 2-fold:
1) Stay positive!
2) Ensure you have a good, strong Support Base!

Sadly, many, many sufferes of cancer do not have one of these. Even worse, neither.
Cancer is still a black stain upon life, however we have come a long way in diagnosing and treating and curing cancer.
There is always hope. And that hope, as we continue along the path of cure-finding, is getting stronger and stronger.
One day, the hope will turn into cure!

Reece
08-10-11, 06:38 PM
Best of luck mate, hopefully there is no reaction, you will have to post after your follow up with the oncologist, but the future looks brighter.:yep:
Cheers.

Feuer Frei!
08-10-11, 07:09 PM
Best of luck mate, hopefully there is no reaction, you will have to post after your follow up with the oncologist, but the future looks brighter.:yep:
Cheers.
Thanks m8, absolutely will keep members up to date.
Not out of the woods yet ofc. But, things are looking good so far.
Better than I hoped.

Castout
08-10-11, 07:29 PM
Thanks m8, absolutely will keep members up to date.
Not out of the woods yet ofc. But, things are looking good so far.
Better than I hoped.


Keep positive. Glad it has been good so far. :)

Flaxpants
08-11-11, 03:16 AM
Nice One FF :up:. Good news for you and the support team!